Dear Family
Margaret here. As many of you know, on Thursday, Nov 6 Michael was taken to Riverside Emergency. Michael and Debbie are getting divorced; this on top of other troubles has caused physical, mental and emotional illness for Michael. He has been transferred to Twin Valley Behavioral Health to receive the help he needs.
Twin Valley Behavioral Health Care is located at 2200 W Broad Street and the phone number is (614) 752-0333. On Thursday, November 13 at 10:30 a Treatment Team Meeting will be held with Michael's medical staff and any family members who can make it to determine the best course of action to get Michael well enough to be part of the community. Right now he is expected to be in hospital for two or three weeks. As you can imagine he is extremely angry about this and not very receptive to hearing from anyone.
Michael will not be going back to his family home once he is released. He will be starting over. Debbie and I will be working together to find an apartment for him and getting him set up.
Please pray for Michael to accept the help that is at hand and to find the strength necessary to move forward.
Love from your (very sad) favorite
Margaret
Saturday, November 8, 2008
Wednesday, November 5, 2008
Jason Announcement
November 01, 2008
Family & Friends,
We are happy to announce that Jason and Sylvia are now married! As much as we would have loved for all of you to be with us, we decided to spend our special day by ourselves only. We appreciate your understanding! And to make you feel like you were there with us, we are sending a packet of pictures from our day, before during and after our wedding ceremony.
It was great. A perfect day, in our eyes. We are both so very happy.
We look forward to seeing you all over the upcoming holidays and bragging about ourselves. Just kidding. We love you all.
Jason And Sylvia Burke
http://s223.photobucket.com/albums/dd75/RavinVsFlud/Jason%20And%20Sylvia%20Wedding/?albumview=slideshow
Family & Friends,
We are happy to announce that Jason and Sylvia are now married! As much as we would have loved for all of you to be with us, we decided to spend our special day by ourselves only. We appreciate your understanding! And to make you feel like you were there with us, we are sending a packet of pictures from our day, before during and after our wedding ceremony.
It was great. A perfect day, in our eyes. We are both so very happy.
We look forward to seeing you all over the upcoming holidays and bragging about ourselves. Just kidding. We love you all.
Jason And Sylvia Burke
http://s223.photobucket.com/albums/dd75/RavinVsFlud/Jason%20And%20Sylvia%20Wedding/?albumview=slideshow
Monday, September 15, 2008
Latest from Margaret
Hey everybody. I cannot sit silently by and wait for Katie to write something else. It is my turn to fill in the blanks.
MAMA AND PAPA
I know that John and Paul have been doing some visiting with Mama and Papa; I am glad to know that everyone is seeing them.
I saw both Mama and Papa this last week. Kate and I moved some of Mama's things into her new room followed by Bob and Jason moving Mama's dresser in for us. The atmosphere in the room is greatly enhanced by Mama's belongings - even if Mama doesn't notice, her visitors will. I know that Mary raised some issues regarding Mama's clothes, room share, etc with The Arbors' staff. Hopefully these issues will be resolved. I am so appreciative of the many ways our family demonstrates its love.
Just to let everyone know, I still have some of Mama's clothes and a few small pieces of furniture. I will continue to hold onto these items until they are needed and/or anyone wants them.
Mama hasn't been well the last couple of times I saw her. She hadn't taken her Adavan (sp?) the other day and was very agitated. Apparently she spat out her breakfast at other patients and the aide followed by refusing to take the Adavan. Lovely. She was very tense and fearful while Kate and I were there. We did get the medication in her by secreting it in chocolate pudding. We passed that suggestion on to the staff, who seemed open to the information. We also tracked down some of Mom's missing laundry; labeled and sorted belongings; organized Mom's drawers; and of course Kate cleaned Mama up and lotioned her thoroughly. Mama didn't speak much; however, she did join in when Kate and I sang some songs we remembered Mama singing (of course neither of us could remember all of the words).
I saw Papa later in the week on my own; I had not seen him in weeks. I thought he would look worse than he did. His leg was swollen, but I didn't think his face or stomach looked especially swollen. What shocked me was his difficulty in saying the words he wanted to get out. He wanted to talk, but nothing made sense. He did get out, "I love you" several times (what he actually meant to say was, "You're my favorite.").
Remember, Papa's birthday is this Wednesday, Sept 17.
MARGARET'S NEWS
CANCER - Most of you have heard that I have endometrium cancer (in my uterus). This should be fairly straight forward to take care of as it has been caught early. On Oct 1 I will be having my uterus and ovaries removed (I never thought my battle with weight would come to a hysterectomy). Depending on the surgery used, I can be home that night or if an incision is required I will be in hospital 3/4 days. I have been told to expect 6 weeks of recovery. Help is warmly and thankfully accepted.
BJ DEPARTING & PARTY - My other news is that BJ has decided to return to Australia (yes the wails you have heard are me crying). He leaves Sept 29. I will be hosting a Good Luck gathering at my house (6938 Ernest Way, Dublin) on Saturday, Sept 20 from 3pm to ??? for anyone available to wish BJ a safe trip and good luck. Please bring whatever you'd like to drink and a dish to share.
Hope to see you all soon.
Love from your favorite Margaret
MAMA AND PAPA
I know that John and Paul have been doing some visiting with Mama and Papa; I am glad to know that everyone is seeing them.
I saw both Mama and Papa this last week. Kate and I moved some of Mama's things into her new room followed by Bob and Jason moving Mama's dresser in for us. The atmosphere in the room is greatly enhanced by Mama's belongings - even if Mama doesn't notice, her visitors will. I know that Mary raised some issues regarding Mama's clothes, room share, etc with The Arbors' staff. Hopefully these issues will be resolved. I am so appreciative of the many ways our family demonstrates its love.
Just to let everyone know, I still have some of Mama's clothes and a few small pieces of furniture. I will continue to hold onto these items until they are needed and/or anyone wants them.
Mama hasn't been well the last couple of times I saw her. She hadn't taken her Adavan (sp?) the other day and was very agitated. Apparently she spat out her breakfast at other patients and the aide followed by refusing to take the Adavan. Lovely. She was very tense and fearful while Kate and I were there. We did get the medication in her by secreting it in chocolate pudding. We passed that suggestion on to the staff, who seemed open to the information. We also tracked down some of Mom's missing laundry; labeled and sorted belongings; organized Mom's drawers; and of course Kate cleaned Mama up and lotioned her thoroughly. Mama didn't speak much; however, she did join in when Kate and I sang some songs we remembered Mama singing (of course neither of us could remember all of the words).
I saw Papa later in the week on my own; I had not seen him in weeks. I thought he would look worse than he did. His leg was swollen, but I didn't think his face or stomach looked especially swollen. What shocked me was his difficulty in saying the words he wanted to get out. He wanted to talk, but nothing made sense. He did get out, "I love you" several times (what he actually meant to say was, "You're my favorite.").
Remember, Papa's birthday is this Wednesday, Sept 17.
MARGARET'S NEWS
CANCER - Most of you have heard that I have endometrium cancer (in my uterus). This should be fairly straight forward to take care of as it has been caught early. On Oct 1 I will be having my uterus and ovaries removed (I never thought my battle with weight would come to a hysterectomy). Depending on the surgery used, I can be home that night or if an incision is required I will be in hospital 3/4 days. I have been told to expect 6 weeks of recovery. Help is warmly and thankfully accepted.
BJ DEPARTING & PARTY - My other news is that BJ has decided to return to Australia (yes the wails you have heard are me crying). He leaves Sept 29. I will be hosting a Good Luck gathering at my house (6938 Ernest Way, Dublin) on Saturday, Sept 20 from 3pm to ??? for anyone available to wish BJ a safe trip and good luck. Please bring whatever you'd like to drink and a dish to share.
Hope to see you all soon.
Love from your favorite Margaret
Monday, August 4, 2008
Long Time No Blog...
Hi Family and Friends...it's Kate. Sorry for such a long time in between blogs...Summer is flying by at an alarmingly fast pace. How do the days go so quickly?
Let's see, hopefully you all have heard that Lita's mother-in-law (Bob's mom, Ruby)passed away. Very sad time for Lita and for Bob. There is a service on Weds. at Schoedinger's in Worthington at 1pm, followed by a gathering at Liti and Bob's house. She would love any support in your physical presence, but I'm sure would love cards for those of you who can't be here. Her new address is:
Noelita and Bob Maldeis
3242 Newgate Court
Dublin, Ohio 43017
Mama and Papa continue their slow decline in health. Some days are better than others, but most visits are sad these days. We have decided to keep Mama at the Arbors in Hilliard and did get her back under hospice care. It does not look like she will walk again, but they will keep going with what they call restorative nursing care. She is not eligible for physical therapy because of her advanced dementia...she just doesn't understand what they want her to do. Please visit whenever you can. Papa is still at the Forum. Mama's new address is:
The Arbors at Hilliard
5471 Scioto Darby Rd.
Hilliard, Ohio 43026
When you visit Mama for the first time, be prepared...the facility is, well, crappy to look at. It looks more hospital like, and has that "old people" smell to it. BUT, the care she receives is wonderful and loving. I just love how they treat her. And in the end, I think this is the most important thing.
Let's see my family...We are all doing well, getting ready for back to school time. Megan has volleyball try-outs tonight, and has been busy with summer leagues, and volleyball conditioning, and lots of babysitting to pay for her social life in the evenings. Jena has been practicing her version of "The Star Spangled Banner" which she will sing for the home volleyball games at Megan's high school (it pays to have a senior on the team :) Nicole got braces this summer and a pallet expander, so has had to re-learn how to talk and eat with this big contraption in her mouth.
We have had a nice summer with our big splurge being the Ranch. We had a blast, as always, and can't wait to go again next year. I have begun the job hunt and have sent in a few resumes, no responses yet. I will keep you all posted.
Please send any updates. Especially the good news. Thanks Val for putting information on Baby Gavin.
Love,
Kate
Let's see, hopefully you all have heard that Lita's mother-in-law (Bob's mom, Ruby)passed away. Very sad time for Lita and for Bob. There is a service on Weds. at Schoedinger's in Worthington at 1pm, followed by a gathering at Liti and Bob's house. She would love any support in your physical presence, but I'm sure would love cards for those of you who can't be here. Her new address is:
Noelita and Bob Maldeis
3242 Newgate Court
Dublin, Ohio 43017
Mama and Papa continue their slow decline in health. Some days are better than others, but most visits are sad these days. We have decided to keep Mama at the Arbors in Hilliard and did get her back under hospice care. It does not look like she will walk again, but they will keep going with what they call restorative nursing care. She is not eligible for physical therapy because of her advanced dementia...she just doesn't understand what they want her to do. Please visit whenever you can. Papa is still at the Forum. Mama's new address is:
The Arbors at Hilliard
5471 Scioto Darby Rd.
Hilliard, Ohio 43026
When you visit Mama for the first time, be prepared...the facility is, well, crappy to look at. It looks more hospital like, and has that "old people" smell to it. BUT, the care she receives is wonderful and loving. I just love how they treat her. And in the end, I think this is the most important thing.
Let's see my family...We are all doing well, getting ready for back to school time. Megan has volleyball try-outs tonight, and has been busy with summer leagues, and volleyball conditioning, and lots of babysitting to pay for her social life in the evenings. Jena has been practicing her version of "The Star Spangled Banner" which she will sing for the home volleyball games at Megan's high school (it pays to have a senior on the team :) Nicole got braces this summer and a pallet expander, so has had to re-learn how to talk and eat with this big contraption in her mouth.
We have had a nice summer with our big splurge being the Ranch. We had a blast, as always, and can't wait to go again next year. I have begun the job hunt and have sent in a few resumes, no responses yet. I will keep you all posted.
Please send any updates. Especially the good news. Thanks Val for putting information on Baby Gavin.
Love,
Kate
Friday, July 25, 2008
July 25th Update on Pops
Just spoke to Nancy at Forum. Papa was found leaving the AL area last night in middle of night. He actually got out into service area beyond the assisted (AL) area. Of course, the security alarm went off when he went through doors with punching in passcode. Nancy indicated they were going to have to put a wander bracelet on him. Costs around $65. This will trigger alarm whenever Papa approaches the AL doors that are secured.
Dr. Harris saw Papa yesterday and said he seemed good. Nancy indicated most days now Papa's face is very puffy and feet are swollen. She also indicated that Papa is beginning to show signs of being anxious late in afternoon and evening. He's not good at those times. Example: last night had to have his meal in his room. He could not go to dining room. Nancy also indicated that they have noticed that his appetite is not very good.
Finally, the hard question: do they have an idea about how much time poor Papa has? Nancy indicated they still do not have an idea...she said it could be any time. Said she would not be surprised if she walked in his room one morning and he was gone. Just thought I should let you all know.
Love, Tish
Dr. Harris saw Papa yesterday and said he seemed good. Nancy indicated most days now Papa's face is very puffy and feet are swollen. She also indicated that Papa is beginning to show signs of being anxious late in afternoon and evening. He's not good at those times. Example: last night had to have his meal in his room. He could not go to dining room. Nancy also indicated that they have noticed that his appetite is not very good.
Finally, the hard question: do they have an idea about how much time poor Papa has? Nancy indicated they still do not have an idea...she said it could be any time. Said she would not be surprised if she walked in his room one morning and he was gone. Just thought I should let you all know.
Love, Tish
Friday, July 18, 2008
Update on Pops
7/18/08: Gosh it's been forever. Just a real fast update. Forum called about 2 days ago. The medical staff noticed a worsening of edema for Pops, so Dr. Harris has prescribed Lasix again. Just wanted you all to know.
I hope the Summer is treating all of you well...
Love, Tish
I hope the Summer is treating all of you well...
Love, Tish
Thursday, July 3, 2008
More info
Hi from Kate...
I went to see Mama today and got to speak with her nurse, Heather, and the physical therapist that works with her. She had a pretty good day yesterday, but not so good today. She was very combative today, and tried to hit her nurse. Heather said she feels that Mama's pain is not under good control, so she requested a pain med change from Darvocet (every 12 hours) to Percocet every 4-6 hours. She feels they can manage Mama's pain better this way, and also said the Percocet also has Tylenol in it..for added pain relief. Doctor has approved this order.
I loved Heather, who gave me lots of information and walked me down to meet the physical therapist. The physical therapist told me that Mama was also combative with them today, but that they did get her sitting for a bit in her wheelchair, and even standing for a short while. She should only bear 50% of her weight on her bad leg, and she doesn't understand that directive, so it is a challenge. They are hoping to get her pain under control first, and then she will be able to do more.
She didn't eat too well, but they were going to try again at dinner. And she was refusing to take her meds...I suggested crushing them and putting them in chocolate, I know the Forum has success with that. They said they would try it.
When I saw her, she was asleep in her bed (afternoon). She opened her eyes briefly, and told me she loved me "so much". It was sweetly sad. I rubbed her hands and arms with lotion and put cold cream on her face....she really seemed to enjoy the physical touch. I put her glasses back on, sat holding her hand. She spent most of my visit sleeping, opening her eyes occasionally. Heather said she had been awake all morning, and that she thought the pain meds were just kicking in...so after a short visit, I left.
Papa was asleep when Margaret and I arrived for a visit Weds evening. He was sleeping so soundly that we didn't wake him...We knew Tish had been there earlier in the day and Lita and Bob had been there the day before. We were able to bring some Ensure, shampoo, and body wash that he needed, and Tish had brought some more root beer, so he is stocked for now. He might want some more little sweet snacks if someone wants to bring some. The nurse did tell me that his confusion seems to be increasing.
All in all I feel pretty good about Mama's situation, as good as I can. They do seem to have some really good people there, and I don't think we could do any better. They only had Mama in a shirt, diaper, and socks. I think this is for comfort as they change her...it is too painful to have to pull all her clothes off. But, she did seem cold to me, so I asked for extra blankets and Heather rounded up three or four. Mama smiled and said "thank you" as I put them on her.
Okay, that's all you will probably hear from me for the next ten days or so, as we will be out of town until the 12th. Hope all is well with everyone. We will be enjoying some local Fourth of July activities before we head out of town. Have a safe holiday, and talk to you all soon!
Love,
Kate
p.s. Thank you to Mary for meeting Mama at the doctor next week.
I went to see Mama today and got to speak with her nurse, Heather, and the physical therapist that works with her. She had a pretty good day yesterday, but not so good today. She was very combative today, and tried to hit her nurse. Heather said she feels that Mama's pain is not under good control, so she requested a pain med change from Darvocet (every 12 hours) to Percocet every 4-6 hours. She feels they can manage Mama's pain better this way, and also said the Percocet also has Tylenol in it..for added pain relief. Doctor has approved this order.
I loved Heather, who gave me lots of information and walked me down to meet the physical therapist. The physical therapist told me that Mama was also combative with them today, but that they did get her sitting for a bit in her wheelchair, and even standing for a short while. She should only bear 50% of her weight on her bad leg, and she doesn't understand that directive, so it is a challenge. They are hoping to get her pain under control first, and then she will be able to do more.
She didn't eat too well, but they were going to try again at dinner. And she was refusing to take her meds...I suggested crushing them and putting them in chocolate, I know the Forum has success with that. They said they would try it.
When I saw her, she was asleep in her bed (afternoon). She opened her eyes briefly, and told me she loved me "so much". It was sweetly sad. I rubbed her hands and arms with lotion and put cold cream on her face....she really seemed to enjoy the physical touch. I put her glasses back on, sat holding her hand. She spent most of my visit sleeping, opening her eyes occasionally. Heather said she had been awake all morning, and that she thought the pain meds were just kicking in...so after a short visit, I left.
Papa was asleep when Margaret and I arrived for a visit Weds evening. He was sleeping so soundly that we didn't wake him...We knew Tish had been there earlier in the day and Lita and Bob had been there the day before. We were able to bring some Ensure, shampoo, and body wash that he needed, and Tish had brought some more root beer, so he is stocked for now. He might want some more little sweet snacks if someone wants to bring some. The nurse did tell me that his confusion seems to be increasing.
All in all I feel pretty good about Mama's situation, as good as I can. They do seem to have some really good people there, and I don't think we could do any better. They only had Mama in a shirt, diaper, and socks. I think this is for comfort as they change her...it is too painful to have to pull all her clothes off. But, she did seem cold to me, so I asked for extra blankets and Heather rounded up three or four. Mama smiled and said "thank you" as I put them on her.
Okay, that's all you will probably hear from me for the next ten days or so, as we will be out of town until the 12th. Hope all is well with everyone. We will be enjoying some local Fourth of July activities before we head out of town. Have a safe holiday, and talk to you all soon!
Love,
Kate
p.s. Thank you to Mary for meeting Mama at the doctor next week.
Wednesday, July 2, 2008
Mama info
Hi all...it's Kate
I just spoke with Mama's nurse, Sheena. Sheena has been there with Mama Monday, Tuesday, and Weds. Tomorrow and Friday, Mama's nurse will be Heather. Sheena told me that they did begin physical therapy yesterday, and are working on transfers and sitting up right now...not walking yet. They got her in and out of wheelchair several times and she went down to the dining hall for breakfast today in wheelchair. She seemed to enjoy the dining hall, and ate a full bowl of cereal with some hot tea. (They were offering coffee, and I told them she prefers tea...so she will get tea from here on out.) I also told them she loves fruit, and that is something that she will usually eat. She will receive physical therapy 5x a week (Monday-Friday).
She does have a bed alarm on the bed now, so if she attempts to sit up and move off the bed the nurse's station will be alerted.
Lastly, she does have a follow up appointment with the surgeon on July 9th at 11am. Sheena has arranged for transport to and from, but is hoping a family member will be available to meet Mama at the doctor's office (Sheena said she has given Mary the info on address, etc.). Margaret and I are out of town this whole week...so is there a family member that can do this? We defintely need someone to listen to what the surgeon says and pass on info, ask any pertinent questions, etc.
I talked to the hospice nurse yesterday, Denise. She was waiting for Papa to come back to his room from lunch, so we got to chat a little bit. She was the one to see Mama when Mama fell, so she wanted to know how Mama was. For insurance reasons, we had to withdraw Mama from hospice while she is being treated for hip fracture and recuperation...then she can go right back under hospice care when she is back at the Forum.
Denise also told me that she knows Papa has little sweets around his room, and seems to really enjoy those...Technically Papa is on a sweet restricted diet. She felt the enjoyment he gets from these is more important at this point, and asked if it was okay to talk with the doctor about doing away with the restriction on his diet. I said yes. One more step...
I think that is all for now. Margaret was hoping to see Mama and Papa today. I am hoping to see one today and one tomorrow. Margaret and I will both be out of town from July 5-12. Cell phone service is spotty up at the Ranch. If an emergency arises, try my cell...but then Wolf Lake Ranch phone is 1-231-745-3890. One of the owners, or staff will answer, but they can get us a message. (We might be down at the lake, or on a horse ride, so if you leave message with them, they will track us down.)
I thinks that is all for now. Love, Kate
I just spoke with Mama's nurse, Sheena. Sheena has been there with Mama Monday, Tuesday, and Weds. Tomorrow and Friday, Mama's nurse will be Heather. Sheena told me that they did begin physical therapy yesterday, and are working on transfers and sitting up right now...not walking yet. They got her in and out of wheelchair several times and she went down to the dining hall for breakfast today in wheelchair. She seemed to enjoy the dining hall, and ate a full bowl of cereal with some hot tea. (They were offering coffee, and I told them she prefers tea...so she will get tea from here on out.) I also told them she loves fruit, and that is something that she will usually eat. She will receive physical therapy 5x a week (Monday-Friday).
She does have a bed alarm on the bed now, so if she attempts to sit up and move off the bed the nurse's station will be alerted.
Lastly, she does have a follow up appointment with the surgeon on July 9th at 11am. Sheena has arranged for transport to and from, but is hoping a family member will be available to meet Mama at the doctor's office (Sheena said she has given Mary the info on address, etc.). Margaret and I are out of town this whole week...so is there a family member that can do this? We defintely need someone to listen to what the surgeon says and pass on info, ask any pertinent questions, etc.
I talked to the hospice nurse yesterday, Denise. She was waiting for Papa to come back to his room from lunch, so we got to chat a little bit. She was the one to see Mama when Mama fell, so she wanted to know how Mama was. For insurance reasons, we had to withdraw Mama from hospice while she is being treated for hip fracture and recuperation...then she can go right back under hospice care when she is back at the Forum.
Denise also told me that she knows Papa has little sweets around his room, and seems to really enjoy those...Technically Papa is on a sweet restricted diet. She felt the enjoyment he gets from these is more important at this point, and asked if it was okay to talk with the doctor about doing away with the restriction on his diet. I said yes. One more step...
I think that is all for now. Margaret was hoping to see Mama and Papa today. I am hoping to see one today and one tomorrow. Margaret and I will both be out of town from July 5-12. Cell phone service is spotty up at the Ranch. If an emergency arises, try my cell...but then Wolf Lake Ranch phone is 1-231-745-3890. One of the owners, or staff will answer, but they can get us a message. (We might be down at the lake, or on a horse ride, so if you leave message with them, they will track us down.)
I thinks that is all for now. Love, Kate
Sunday, June 29, 2008
Weekend Update
Hi from Kate...
Not sure what everyone knows...so Mama fell and broke her hip...had surgery on Thursday night (well actually it was early Friday morning...) Thank God for large families cause she was able to have many of her children at the hospital at various times during the several days of surgery and hospital stay.
There has been a change for her recuperation plan. Originally she was going to a nursing facility on Bethel Rd...but they could not (or would not) take her, due to her behavior and dementia issues...so she is giong to The Arbors in Hilliard...5471 Scioto Darby Rd. Hilliard Ohio 43026. Phone is 876-7356. Please visit if you can. Papa too...I went to visit him on Saturday, and he really wants visitors. He hates that all he does is sleep and eat. I told him about Mama's fall and surgery...He was very worried, but I told him that all of her kids were taking care of her...and he was happy.
I took Papa for a walk down the hall and sat watching TV in the small family room. Even to walk him down the hall is stimulation he needs. Thank you to all family members that try to give their time and energy...it all makes a huge difference. Grandkids...Papa wants visitors...he may not be able to hear and understand everything you are saying...but he does comprehend that we care...and he wants to see people. Even if you can go for half an hour...please go. Take him for a walk down the hall, with his walker, or bring pictures to share...I'm hoping to get the girls over to play the piano...Anything you can think of to stimulate him.
Megan visited OU with Jim on Saturday, and OSU with me on Tuesday. We still have University of Cincinnati, Michigan State, and Miami of Ohio later this month. Jena managed to lose her retainer last week, so tomorrow I go to find out how much $$$ it will cost to replace...UGGH! Nicole is beginning her braces tomorrow too..wish us GOOD LUCK!
Our trip to Wolf Lake Ranch is coming on Saturday...Margaret is coming too...Paul and John can't come this year...bummer! We'll be back July 12th. Hope all is well with everyone...please send updates.
Love,
Kate
Not sure what everyone knows...so Mama fell and broke her hip...had surgery on Thursday night (well actually it was early Friday morning...) Thank God for large families cause she was able to have many of her children at the hospital at various times during the several days of surgery and hospital stay.
There has been a change for her recuperation plan. Originally she was going to a nursing facility on Bethel Rd...but they could not (or would not) take her, due to her behavior and dementia issues...so she is giong to The Arbors in Hilliard...5471 Scioto Darby Rd. Hilliard Ohio 43026. Phone is 876-7356. Please visit if you can. Papa too...I went to visit him on Saturday, and he really wants visitors. He hates that all he does is sleep and eat. I told him about Mama's fall and surgery...He was very worried, but I told him that all of her kids were taking care of her...and he was happy.
I took Papa for a walk down the hall and sat watching TV in the small family room. Even to walk him down the hall is stimulation he needs. Thank you to all family members that try to give their time and energy...it all makes a huge difference. Grandkids...Papa wants visitors...he may not be able to hear and understand everything you are saying...but he does comprehend that we care...and he wants to see people. Even if you can go for half an hour...please go. Take him for a walk down the hall, with his walker, or bring pictures to share...I'm hoping to get the girls over to play the piano...Anything you can think of to stimulate him.
Megan visited OU with Jim on Saturday, and OSU with me on Tuesday. We still have University of Cincinnati, Michigan State, and Miami of Ohio later this month. Jena managed to lose her retainer last week, so tomorrow I go to find out how much $$$ it will cost to replace...UGGH! Nicole is beginning her braces tomorrow too..wish us GOOD LUCK!
Our trip to Wolf Lake Ranch is coming on Saturday...Margaret is coming too...Paul and John can't come this year...bummer! We'll be back July 12th. Hope all is well with everyone...please send updates.
Love,
Kate
Thursday, June 26, 2008
Just heard from Forum...
Thursday (6/26/08): From Tish. Sorry I missed the Wed get together. Anyway, I just heard from one of the nurses at the Forum. Mama was very agitated today and went to hit one of the workers, and consequently lost her balance. She fell, hitting her forehead (around her eyebrow) on the hand rail attached to the wall. She has a pretty big knot on her eyebrow. Hospice medical staff is going over to check Mama out and make sure she is OK.
Just wanted to keep you all in the loop. Talk to you later.
Just wanted to keep you all in the loop. Talk to you later.
Sunday, June 22, 2008
Kate's back!!!
Hi everyone it's Kate....Megan and I got back late Friday night from her volleyball in Florida. It was a lot of fun watching her in her element with all of those hundreds of other volleyball players, lots of college recruiters and coaches. She had a blast, played some great volleyball, and we got a lot of sunshine. Very nice time for both of us.
Jena and Nicole were a big help to Jim while I was gone...they helped around the house with their chores and helped with the dog each day. It was good practice for them before I head back to work. (Hopefully late summer, early fall.)
I plan on seeing Mama and Papa either Monday or Wednesday. Mary mentioned the Forum was having a family support meeting for family members of dementia patients. It is Weds. evening 6:30. I'm hoping to pick Liti up and take her. Mary was also planning on attending. Any family members are welcome. Dessert is provided. Meeting is in Dementia building...3rd floor lobby area of independent living section. I know Tish was seeing them today...I hear Mama still has her watch, glad it makes her happy. Fran, Megan picked up the clothes for Baby Hugo this morning...she was at a friend's house right down the street from Mary's. I will get them over to Amber this week.
We are having a big garage sale this weekend with some neighbors. I am getting rid of all my "little kid" toys...YEAH!!! I will hopefully get my loft back! I'm sure I will keep a few things for kiddos to play with when they come over for Thanksgiving, etc. But hopefully next time you all come over, my house and my backyard will look different...a bit more focused on the adults and older kids in the house :)
Sorry I've been neglecting the blog lately, hopefully I will have more fun info to share the next few weeks. I would love to hear stories about the graduation parties. Val, how is the cat? I'm off to take some girls to the mall to spend the money that seems to burning a hole in their pocket...and then I will hopefully get to work out in the yard...I have weeds that are bigger than my dog :)
Love to you all.
Kate
Jena and Nicole were a big help to Jim while I was gone...they helped around the house with their chores and helped with the dog each day. It was good practice for them before I head back to work. (Hopefully late summer, early fall.)
I plan on seeing Mama and Papa either Monday or Wednesday. Mary mentioned the Forum was having a family support meeting for family members of dementia patients. It is Weds. evening 6:30. I'm hoping to pick Liti up and take her. Mary was also planning on attending. Any family members are welcome. Dessert is provided. Meeting is in Dementia building...3rd floor lobby area of independent living section. I know Tish was seeing them today...I hear Mama still has her watch, glad it makes her happy. Fran, Megan picked up the clothes for Baby Hugo this morning...she was at a friend's house right down the street from Mary's. I will get them over to Amber this week.
We are having a big garage sale this weekend with some neighbors. I am getting rid of all my "little kid" toys...YEAH!!! I will hopefully get my loft back! I'm sure I will keep a few things for kiddos to play with when they come over for Thanksgiving, etc. But hopefully next time you all come over, my house and my backyard will look different...a bit more focused on the adults and older kids in the house :)
Sorry I've been neglecting the blog lately, hopefully I will have more fun info to share the next few weeks. I would love to hear stories about the graduation parties. Val, how is the cat? I'm off to take some girls to the mall to spend the money that seems to burning a hole in their pocket...and then I will hopefully get to work out in the yard...I have weeds that are bigger than my dog :)
Love to you all.
Kate
Monday, June 16, 2008
Update
Hi from Tish. Stopped by to see Papa on Friday. Since I was not going to be able to drop in during the weekend (out of town & celebrating Don's Father Day w/ him on Sunday) I wanted to spend some time w/ Pops on Fri. He was exhausted and not really up for any sort of visit. He is again beginning to swell(face and feet). I need to mention that to Dawn @ hospice. Also, Rich, I am not certain if the hearing aid is working. I have talked to Kate about this (and she has spoken to Margaret). The 3 of us have visited Pops on a fairly regular basis recently, and Papa seems to be having a lot of difficulty hearing. I'm not sure where we were going to have his hearing aid checked, but maybe it would be a good idea to set up the appt again. Can you please advise?
Dawn (from Hospice) called on Friday a.m. to give me an update on Papa. He is on Atavan now (same drug as Mama) which should help with his anxiety and agitation. The Forum had called earlier in the week to let me know that Papa's dementia is getting worse and he is beginning to live more and more in the past. He frequently thinks that he is at work or needs to go to work. This is making him very anxious...thus the Atavan. Also, Lou (from Hospice) called me last Thursday to tell me that he had a wonderful visit with Mama. Lou is the minister for Harbor Light Hospice. He took his mandolin and played religious songs for Mama. According to Lou she loved it. He said she was so sweet and a very "gracious" lady.
I hope some of the family got to visit with Papa this weekend.
Margaret, I understand you have had your ups & downs medically in recent past. I will give you a call. If you ever find yourself in that situation again, PLEASE CALL ME. I will be happy to take you to the doctor.
I think Kate is still in Atlanta w/ Megan but should be back shortly...
Well, for all of the readers of the Cabrera Family Blog who are fathers, I hope you all had a fabulous Father's Day.
Talk to you all soon. Love, Tish.
Dawn (from Hospice) called on Friday a.m. to give me an update on Papa. He is on Atavan now (same drug as Mama) which should help with his anxiety and agitation. The Forum had called earlier in the week to let me know that Papa's dementia is getting worse and he is beginning to live more and more in the past. He frequently thinks that he is at work or needs to go to work. This is making him very anxious...thus the Atavan. Also, Lou (from Hospice) called me last Thursday to tell me that he had a wonderful visit with Mama. Lou is the minister for Harbor Light Hospice. He took his mandolin and played religious songs for Mama. According to Lou she loved it. He said she was so sweet and a very "gracious" lady.
I hope some of the family got to visit with Papa this weekend.
Margaret, I understand you have had your ups & downs medically in recent past. I will give you a call. If you ever find yourself in that situation again, PLEASE CALL ME. I will be happy to take you to the doctor.
I think Kate is still in Atlanta w/ Megan but should be back shortly...
Well, for all of the readers of the Cabrera Family Blog who are fathers, I hope you all had a fabulous Father's Day.
Talk to you all soon. Love, Tish.
Monday, June 9, 2008
Update on Weekend
In Kate's absence I will fill you in on latest with Mama & Papa. I had lunch w/ Papa and then took him over to see Mama. This was on Sunday. We visited Mama for about 20 minutes. She was having a bad day...crying quite a bit. However, when we first arrived she was very excited to see both of us, but particularly excited to see Papa. She kept repeating "how did we make it happen?" You cannot help but wonder where her mind has taken her. Papa was pretty exhausted after only 20 min, so I took him back to his apt so he could nap. By then, Mama was also napping.
I am not sure Papa's hearing aid is working as it should. I had to repeat all of my questions and he could only hear me if I was sort of yelling. My guess is there might be a problem with hearing aid. I asked the nurse about it, and she indicated that he was responsive to their questions so her guess is everything is OK. Who knows.
I still have not talked to Nancy V. about Papa's Lasix. I will try to call today.
I'm sorry I missed my nephews' graduation parties this weekend. I thought about both of you and I hope your parties were a great success.
Well, that's about it. Talk to you all soon. Love, T.
p.s. One thing I want to mention. Kate recently asked Papa what we could do for him to make things better. His response was "more visits." I know it's tough...but I thought I would throw this out there.
I am not sure Papa's hearing aid is working as it should. I had to repeat all of my questions and he could only hear me if I was sort of yelling. My guess is there might be a problem with hearing aid. I asked the nurse about it, and she indicated that he was responsive to their questions so her guess is everything is OK. Who knows.
I still have not talked to Nancy V. about Papa's Lasix. I will try to call today.
I'm sorry I missed my nephews' graduation parties this weekend. I thought about both of you and I hope your parties were a great success.
Well, that's about it. Talk to you all soon. Love, T.
p.s. One thing I want to mention. Kate recently asked Papa what we could do for him to make things better. His response was "more visits." I know it's tough...but I thought I would throw this out there.
Tuesday, June 3, 2008
Kate's update
Hi everybody...it's been awhile. Our house has been a continous wave of end of year activity. The girls last day of school is tomorrow! Megan's taking finals this week, and getting ready for her volleyball tournament at the Nationals in Orlando Florida. They played extremely well in Louisville over the Memorial Day weekend. Nicole has 5th grade graduation tomorrow morning and will officially be a middle schooler. She has joined the moneymakers in our house and has been very busy being a mother's helper in the neighborhood.
Jena had her end of year choir concert where she was one of four students (out of about 200) to receive an award for her musicianship. She is singing in the end of year talent show tomorrow. Okay, enough bragging about my girls...I am one worn out Mama between awards banquets (track, volleyball, choir, etc), end of year girl scouts (yes this is my twelfth and final year as a leader), piano recitals, volleyball tournaments, track meets, homework, etc. I am looking forward to summer when I won't be babysitting 50 hours a week...maybe I'll get my house cleaned finally:):):) Tish...I also did not get any house cleaning done when we got home on Sunday.
This weekend, Jim and I are taking the girls for a long weekend with two neighbor families to a lodge at the Wilds...(safari type place associated with Columbus Zoo). We will have our own little lake with kayaks, canoes and motor boats. It will hopefully be a long weekend of napping by the water, and hanging out by the bonfire. I'm looking forward to it immensely. Unfortunately, that means we will miss all the graduation parties...I'll be thinking about Luke and Joe and all of their parents!
Tish updated you all on our visit to Mama and Papa. I heard from the Forum that hospice brought Mama over to see Papa yesterday, (Monday)...and that they were holding hands and laughing together. Rich is taking Papa's hearing aid in today to get it looked at. On Sunday, he couldn't hear anything at all. It was very frustrating for all of us, (especially him). I am still waiting to hear back about Mama's tooth. They have no idea how it happened...but Sandy is working on getting Mama an appointment with a dentist to get it fixed. She will arrange for a driver, and an aide to go with Mama for the visit. Mama is very disturbed by her chipped tooth, and really wants to get it fixed.
Mama also became enthralled with my watch during our visit. She said she wanted one just like it. Of course, I had to give it to her...(you know me, it was a cheap little Timex)...You would have thought I had given her the moon. She was laughing, and saying Thank you over and over. She kept showing everyone her new watch. It was very sweet and somewhat comical. I'm sure she's lost it by now, but it made her very happy in the moment. Now I need to buy a new watch...I'm going crazy without one :)
Tish and I also visited Lita in the hospital on Sunday. She is back at home as of Monday night. She is tired of all the medical issues in her life and I can't say I blame her one bit! She would love to hear from any family...In case any you don't have it, her new phone number is 614-766-7886. Her new address is 3242 Newgate Ct. Dublin, Ohio 43017.
I think that is all the news I have. Sorry it's been so long, hopefully things will slow down next week.
Love to all,
Kate
Jena had her end of year choir concert where she was one of four students (out of about 200) to receive an award for her musicianship. She is singing in the end of year talent show tomorrow. Okay, enough bragging about my girls...I am one worn out Mama between awards banquets (track, volleyball, choir, etc), end of year girl scouts (yes this is my twelfth and final year as a leader), piano recitals, volleyball tournaments, track meets, homework, etc. I am looking forward to summer when I won't be babysitting 50 hours a week...maybe I'll get my house cleaned finally:):):) Tish...I also did not get any house cleaning done when we got home on Sunday.
This weekend, Jim and I are taking the girls for a long weekend with two neighbor families to a lodge at the Wilds...(safari type place associated with Columbus Zoo). We will have our own little lake with kayaks, canoes and motor boats. It will hopefully be a long weekend of napping by the water, and hanging out by the bonfire. I'm looking forward to it immensely. Unfortunately, that means we will miss all the graduation parties...I'll be thinking about Luke and Joe and all of their parents!
Tish updated you all on our visit to Mama and Papa. I heard from the Forum that hospice brought Mama over to see Papa yesterday, (Monday)...and that they were holding hands and laughing together. Rich is taking Papa's hearing aid in today to get it looked at. On Sunday, he couldn't hear anything at all. It was very frustrating for all of us, (especially him). I am still waiting to hear back about Mama's tooth. They have no idea how it happened...but Sandy is working on getting Mama an appointment with a dentist to get it fixed. She will arrange for a driver, and an aide to go with Mama for the visit. Mama is very disturbed by her chipped tooth, and really wants to get it fixed.
Mama also became enthralled with my watch during our visit. She said she wanted one just like it. Of course, I had to give it to her...(you know me, it was a cheap little Timex)...You would have thought I had given her the moon. She was laughing, and saying Thank you over and over. She kept showing everyone her new watch. It was very sweet and somewhat comical. I'm sure she's lost it by now, but it made her very happy in the moment. Now I need to buy a new watch...I'm going crazy without one :)
Tish and I also visited Lita in the hospital on Sunday. She is back at home as of Monday night. She is tired of all the medical issues in her life and I can't say I blame her one bit! She would love to hear from any family...In case any you don't have it, her new phone number is 614-766-7886. Her new address is 3242 Newgate Ct. Dublin, Ohio 43017.
I think that is all the news I have. Sorry it's been so long, hopefully things will slow down next week.
Love to all,
Kate
Monday, June 2, 2008
It's June 2nd Already
From Tish: Well, it's been awhile, but it's great getting in touch w/ all of you again. Hope the entire, extended family is well. Jeami, it was great seeing your post. Maggie, I haven't seen you in awhile...I understand your man was in town this weekend. Hope you enjoyed his visit. We certainly had gorgeous weather. And, finally, Valerie, I loved your story about the cat. Of course, I'm a cat person so you know I would find that story very endearing.
Kate and I visited Mama and Papa yesterday. Papa was up to a visit w/ Mama so we wheeled him over to the other building. Getting him across the street was hysterical. Kate and I will have to tell you all that story one day. Once at Mama's, we took them outside and sat on the patio. Of course, Mama wanted outside of the gates so we wheeled them around the perimeter of Mama's building. All of this exhausted Papa so I took Papa back while Kate got Mama back inside.
After buying Papa more batteries for his hearing aid, we then took off for the hospital to visit Liti. It was a beautiful day, so Kate, Liti and I sat outside and spent a couple of hours chatting etc. All in all, I think we had a good visit with both Liti and Mama and Papa.
On personal note, I know some of you have not had the opportunity to visit my home in Delaware, but Don and I bought 10 Arborvitae (to act as a barrier between our house and next door neighbor's...they have 3 donkeys and llama) and a bunch of holly bushes. Hurray...we are doing some landscaping on one side of the house that is sorely in need of it. Kate, I got absolutely no housework done when I got home yesterday afternoon. Don and I took that drive up to Hoover Reservoir...it was beautiful.
Well, that's all for now. Love to all, T.
p.s. Dr. Harris took Papa off Lasix altogether and Mama has a chipped tooth. Kate is going to call about the chipped tooth because there is nothing in the log to indicate what happened. A little disconcerting. I am going to call Dr. Harris' office to see if I can find out why they took Papa off Lasix altogether.
Kate and I visited Mama and Papa yesterday. Papa was up to a visit w/ Mama so we wheeled him over to the other building. Getting him across the street was hysterical. Kate and I will have to tell you all that story one day. Once at Mama's, we took them outside and sat on the patio. Of course, Mama wanted outside of the gates so we wheeled them around the perimeter of Mama's building. All of this exhausted Papa so I took Papa back while Kate got Mama back inside.
After buying Papa more batteries for his hearing aid, we then took off for the hospital to visit Liti. It was a beautiful day, so Kate, Liti and I sat outside and spent a couple of hours chatting etc. All in all, I think we had a good visit with both Liti and Mama and Papa.
On personal note, I know some of you have not had the opportunity to visit my home in Delaware, but Don and I bought 10 Arborvitae (to act as a barrier between our house and next door neighbor's...they have 3 donkeys and llama) and a bunch of holly bushes. Hurray...we are doing some landscaping on one side of the house that is sorely in need of it. Kate, I got absolutely no housework done when I got home yesterday afternoon. Don and I took that drive up to Hoover Reservoir...it was beautiful.
Well, that's all for now. Love to all, T.
p.s. Dr. Harris took Papa off Lasix altogether and Mama has a chipped tooth. Kate is going to call about the chipped tooth because there is nothing in the log to indicate what happened. A little disconcerting. I am going to call Dr. Harris' office to see if I can find out why they took Papa off Lasix altogether.
Tuesday, May 20, 2008
Tuesday visit
Hi to all...this is Kate.
I went to see Mama and Papa today...and ended up calling for reinforcements from Margaret...bless you Margaret!!!
I began my visit by going to see Papa...which is what I usually do. His hearing aid wasn't working at all...I changed the battery and finally got it working after several attempts...He is down to one battery left on his night stand...who buys those? He will definitely need some more. The hospice nurse, Denise came while I was there, she had just seen Mama. She took Papa's vitals...and said things were good today. Papa was sitting up in the chair and she thought this was good. She said he is usually in bed when she comes. They said Mama had been sorting her socks and was very upset that one had a hole in it! We talked about how Mama always liked to have a project...and I told them how she used to sew...and especially how I used to love to watch her make quilts. Margaret and I used to get to help tie the knots on the little tassles. We also discussed the picture of the kids that is hanging in Papa's room...I pointed out all the kids and their names...Denise was happy to hear all of this.
Denise left and I visited with Papa...I showed him a couple of Megan's prom pictures...and talked to him about the girls. He was very talkative but also very confused...he was saying non-sensical things...but was animated. As I was getting ready to leave to see Mama...Papa said, "If I don't get to see your Mother....tell her...that I am thinking about her, and I love her." (This took a long time for him to say...but it choked me up so much that I had to ask, "Papa, do you want to go see Mama right now?" He looked at me for a few seconds and then said "YES!" with urgency I hadn't heard him use in a long time. So then I had to figure out how to make this work...I was supposed to pick up my babysitting kids in a half hour and they were twenty minutes away.
Of course....I could call my big sister Margaret...she would help! Three phone calls later, I tracked her down and asked her to meet me at Mama's so she could bring Papa back when he was done visiting. Then I called the pre-school to tell them I was going to be about twenty minutes late. Then we got Papa looking all handsome, brushed his hair...spiffed him up a bit...and off we went in the wheelchair. (Okay get your tissues now...)
When we got over to Mama's she was coming down the hall towards her room with an aide...She reached her hands out to Papa, and he did the same. She said "I missed you sooooo much!" He said he missed her too. He asked to stand up, and I held him up next to her...they hugged, and kissed. They both had tears rolling down their faces...I, of course was sobbing. (Good thing you weren't with me Fran...we would have been two basket cases) So there I was holding both of them together so they could hug. Papa quickly had to sit back down...and we went in Mama's room. Mama told him that she loved him so much...He couldn't hear her, so I had to repeat it for him...and then his words back...were all garbled. But he told me to tell her that he loved her "so big much". They seem to need a translator...and I think part of why Papa doesn't go anymore is...just like all of us find it so hard to go alone...so does he. The driver takes him and drops him off...Papa really needs one of us to go with him, both physically and emotionally. It was all such a tender sweet visit...it is a memory that I will never forget. Mama and Papa held hands in her room and kept patting each other. They kissed a few times, and hugged. Mama was having a lucid day, and was able to ask questions. She wanted to know when she could leave, and if Papa was still living at the house. She asked about her wedding ring...I told her that I had it and I was keeping it safe for her. She was relieved.
Margaret got there after I visited with Mama and Papa for a little bit. She was going to stay with them for a bit longer and then take Papa back for lunch. Again...thank Margaret for helping to make this happen. I couldn't have done it other wise. And it was such a huge gift for Papa and for Mama. He told me thank you so much as I was leaving, he had tears in eyes. I wish I could explain it all better...it was AMAZING. Words are not enough. He did say that he was delighted to have been able to come. That's a new word for him...not wonderful, or okay, or fine, but delighted. It was nice :)
I talked to Margaret briefly after I got home...she was getting Papa settled in his room...he was going to eat lunch in his room and take a nap. She said it all ended very sweetly...I'll let her share her version...Can't wait to hear all about it. No real medical news. Just the emotional stuff. It was a good day. I did tell Papa that I was praying that he and Mama would find each other in heaven soon, and that they would be happy and healthy and young! He looked at me and said, "Yes, that will be wonderful!" I'm going to keep praying...
Love to all you.
Kate
I went to see Mama and Papa today...and ended up calling for reinforcements from Margaret...bless you Margaret!!!
I began my visit by going to see Papa...which is what I usually do. His hearing aid wasn't working at all...I changed the battery and finally got it working after several attempts...He is down to one battery left on his night stand...who buys those? He will definitely need some more. The hospice nurse, Denise came while I was there, she had just seen Mama. She took Papa's vitals...and said things were good today. Papa was sitting up in the chair and she thought this was good. She said he is usually in bed when she comes. They said Mama had been sorting her socks and was very upset that one had a hole in it! We talked about how Mama always liked to have a project...and I told them how she used to sew...and especially how I used to love to watch her make quilts. Margaret and I used to get to help tie the knots on the little tassles. We also discussed the picture of the kids that is hanging in Papa's room...I pointed out all the kids and their names...Denise was happy to hear all of this.
Denise left and I visited with Papa...I showed him a couple of Megan's prom pictures...and talked to him about the girls. He was very talkative but also very confused...he was saying non-sensical things...but was animated. As I was getting ready to leave to see Mama...Papa said, "If I don't get to see your Mother....tell her...that I am thinking about her, and I love her." (This took a long time for him to say...but it choked me up so much that I had to ask, "Papa, do you want to go see Mama right now?" He looked at me for a few seconds and then said "YES!" with urgency I hadn't heard him use in a long time. So then I had to figure out how to make this work...I was supposed to pick up my babysitting kids in a half hour and they were twenty minutes away.
Of course....I could call my big sister Margaret...she would help! Three phone calls later, I tracked her down and asked her to meet me at Mama's so she could bring Papa back when he was done visiting. Then I called the pre-school to tell them I was going to be about twenty minutes late. Then we got Papa looking all handsome, brushed his hair...spiffed him up a bit...and off we went in the wheelchair. (Okay get your tissues now...)
When we got over to Mama's she was coming down the hall towards her room with an aide...She reached her hands out to Papa, and he did the same. She said "I missed you sooooo much!" He said he missed her too. He asked to stand up, and I held him up next to her...they hugged, and kissed. They both had tears rolling down their faces...I, of course was sobbing. (Good thing you weren't with me Fran...we would have been two basket cases) So there I was holding both of them together so they could hug. Papa quickly had to sit back down...and we went in Mama's room. Mama told him that she loved him so much...He couldn't hear her, so I had to repeat it for him...and then his words back...were all garbled. But he told me to tell her that he loved her "so big much". They seem to need a translator...and I think part of why Papa doesn't go anymore is...just like all of us find it so hard to go alone...so does he. The driver takes him and drops him off...Papa really needs one of us to go with him, both physically and emotionally. It was all such a tender sweet visit...it is a memory that I will never forget. Mama and Papa held hands in her room and kept patting each other. They kissed a few times, and hugged. Mama was having a lucid day, and was able to ask questions. She wanted to know when she could leave, and if Papa was still living at the house. She asked about her wedding ring...I told her that I had it and I was keeping it safe for her. She was relieved.
Margaret got there after I visited with Mama and Papa for a little bit. She was going to stay with them for a bit longer and then take Papa back for lunch. Again...thank Margaret for helping to make this happen. I couldn't have done it other wise. And it was such a huge gift for Papa and for Mama. He told me thank you so much as I was leaving, he had tears in eyes. I wish I could explain it all better...it was AMAZING. Words are not enough. He did say that he was delighted to have been able to come. That's a new word for him...not wonderful, or okay, or fine, but delighted. It was nice :)
I talked to Margaret briefly after I got home...she was getting Papa settled in his room...he was going to eat lunch in his room and take a nap. She said it all ended very sweetly...I'll let her share her version...Can't wait to hear all about it. No real medical news. Just the emotional stuff. It was a good day. I did tell Papa that I was praying that he and Mama would find each other in heaven soon, and that they would be happy and healthy and young! He looked at me and said, "Yes, that will be wonderful!" I'm going to keep praying...
Love to all you.
Kate
Sorry missed breakfast...
Note from Tish: Yes, I'm sorry I missed visiting with all of you. Talked to Kate on Saturday and discovered that a group of the "Cabrera" gang was meeting up for breakfast. How great. Sorry I missed you all. Don and I were out of town till late Sunday afternoon.
Wanted to pass some news along to you. Heard from the Forum on Saturday night. Mama apparently wandered from her room and lost her balance. They found her lying on the floor. She did not hurt herself...just had a couple of red marks on her back. She probably fell because of the blood pressure problem she is having. Hopefully, that will be corrected with the new medication.
Anyway, just wanted to share that w/ everyone in case you are visiting and you notice any bruises.
Hope everyone is well, and hope your visit to the big C was enjoyable, Fran.
Love, T.
Wanted to pass some news along to you. Heard from the Forum on Saturday night. Mama apparently wandered from her room and lost her balance. They found her lying on the floor. She did not hurt herself...just had a couple of red marks on her back. She probably fell because of the blood pressure problem she is having. Hopefully, that will be corrected with the new medication.
Anyway, just wanted to share that w/ everyone in case you are visiting and you notice any bruises.
Hope everyone is well, and hope your visit to the big C was enjoyable, Fran.
Love, T.
Friday, May 16, 2008
Saturday Breakfast
Hi this is Kate...
It appears nobody wants to be the chooser of restaurants...so I will.
How about Saturday 9am at First Watch, Mill Run? 3800 Fishinger Blvd. Cols. Oh 43026.
They do not take reservations...so Mary and Fran can you get there about 8:40 to put our name in?
Margaret, can you call Lita and John to invite? I will call Michael (he said he would try to make it)...and Paul...this is westside..so he might be able to come.
Any adults welcome...
Right now, I am guessing 10.
I'll see whoever can make it!
Kate
It appears nobody wants to be the chooser of restaurants...so I will.
How about Saturday 9am at First Watch, Mill Run? 3800 Fishinger Blvd. Cols. Oh 43026.
They do not take reservations...so Mary and Fran can you get there about 8:40 to put our name in?
Margaret, can you call Lita and John to invite? I will call Michael (he said he would try to make it)...and Paul...this is westside..so he might be able to come.
Any adults welcome...
Right now, I am guessing 10.
I'll see whoever can make it!
Kate
Thursday, May 15, 2008
Thursday's visits
Hi to all...this is Kate.
I went and saw Mom and Pops today during my babysitting kiddos pre-school hours. I only had an hour after I got my banking, grocery, gas errands done. But it was a good hour.
I saw Papa first. He looked good (relatively speaking). He was sitting up in his chair sleeping. He smiled when he saw me...and I could tell he was grasping for my name...before I could say...Hi Papa it's Kate...(what I usually say to him)....he asked me how was Rich? He's so sweet...I just said that everybody was good. and he smiled. He drank an Ensure for me (He doesn't care too much for the Glucerna...so I say give him the Ensure.) He did not look swollen, but his face was puffy. His hands looked good. Overall he looked good...just very weak. He tried to talk, but really couldn't put his words together...he did repeat things that I said. Mostly he closed his eyes while I held his hand. He smiled when I told him that John and Amber's baby was born...Hugo Alfredo Cabrera. I'm sure he had been told before, but of course he said..."Wonderful" like he was hearing it for the first time. I told him I was sure this Hugo Cabrera would be a real trouble maker also...and he laughed.
I asked if Papa made the trip to see Mama this week (they ask him on Mondays if he wants to go) They said no...he did not want to go. I told him that I would tell Mama he loved her and he said "Wonderful". Then he went back to dozing in his chair.
When I left...I did tell him, "Adios, don't get lost" which is what Margaret and I always used to say him when he left for work...He repeated, "don't get lost" and smiled.
Then on to see Mama. The podiatrist arrived just ahead of me. I was glad I was there...Mama was sitting in a rocking chair in the hallway right next to her room...there was an aide helping her. She of course was screaming like they were killing her. I got on the floor and held her while he was there...it was just a few minutes. I was able to calm her down...but she was twisting my arms and really hollering...and then when he said he was all done...her eyes got really big and she said "thank you" like he had just given her a gift. It was amazing to see the range of emotions all in twenty seconds. How exhausting/frightening/overwhelming that must be for her.
When he was done, I walked her back to her room, and she laid down. I got her a drink...and sat by her bed. She quickly went into a sleep after grabbing for me frantically and saying...please, please. The aide told me that Mama had had a good morning...eating well, and even sitting out in the main area until the doctor came to see her. When I told Mama that Papa said to say he loved her...her eyes got really big...she smiled and said, Thank you. It connected with her probably more than anything else I said.
That is about all the news on Mama and Papa. My girls are counting the days down for summer. I am counting my days down to be done babysitting...this is my last year of watching kids in my home...I will join Margaret in job searching this summer. I'm sure I'll keep you all posted on anything exciting in that regard.
Lita has been settling into her new place...I hear she met a neighbor yesterday that spent several hours at Lita's house helping her with things and telling Lit all about her fascinating life. She also received a flowering plant and a note from the Welcome Ladies in the neighborhood. They invited her to their monthly ladies luncheon. May's lunch is at Windchimes...Lita RSVP'D yes she would attend...so she is managing to meet some new folks...I'm happy for her. I managed to finally find a new dog walker (the old one wouldn't come to this area). Critter Sitters began this week, and so far, it has worked out very well. Josie loves her mid day walks and this relieves Lita of the stress worrying about Josie especially the days that Bob is out on the road all day.
It was good to visit with Paul this weekend when he came in to see Mom and Pops. Life is about the same for him...working for a livin". His plans to open his own business seem to have hit a rocky patch. He's still hopeful...but searching for some different funding opportunities. Mariah and Jacob are doing well...and Mariah is working hard on Paul to get a dog. They begun research for one that doesn't shed, doesn't bark, doesn't poop much, and doesn't eat much. I'm thinking they might not be getting a dog anytime soon? He had to cancel his plans to join us at the Ranch this year...just wasn't in the budget. Bummer.
Megan has a volleyball tournament this weekend...it is here in Columbus, downtown at the convention center...so if you all decide where and when you are meeting for breakfast let me know...I will do my best to come. If anyone is downtown on Sunday and wants to try to catch some of Megan's v-ball...call my cell phone 783-7717...she plays on and off from about 9am-7pm...I never know the exact schedule until that day when we arrive at tourney site. I do not plan on seeing Mama and Papa this weekend...I think sometimes it can be overwhelming for them. I do plan on going Tuesday morning. So anyone that does go...please feel free to write an update...I love reading everyone's comments. Jenny I'm glad to hear that your visit with Drake went well.
Fran I told both Mama and Papa that you were coming...they both seemed happy.
Love to all.
Kate
I went and saw Mom and Pops today during my babysitting kiddos pre-school hours. I only had an hour after I got my banking, grocery, gas errands done. But it was a good hour.
I saw Papa first. He looked good (relatively speaking). He was sitting up in his chair sleeping. He smiled when he saw me...and I could tell he was grasping for my name...before I could say...Hi Papa it's Kate...(what I usually say to him)....he asked me how was Rich? He's so sweet...I just said that everybody was good. and he smiled. He drank an Ensure for me (He doesn't care too much for the Glucerna...so I say give him the Ensure.) He did not look swollen, but his face was puffy. His hands looked good. Overall he looked good...just very weak. He tried to talk, but really couldn't put his words together...he did repeat things that I said. Mostly he closed his eyes while I held his hand. He smiled when I told him that John and Amber's baby was born...Hugo Alfredo Cabrera. I'm sure he had been told before, but of course he said..."Wonderful" like he was hearing it for the first time. I told him I was sure this Hugo Cabrera would be a real trouble maker also...and he laughed.
I asked if Papa made the trip to see Mama this week (they ask him on Mondays if he wants to go) They said no...he did not want to go. I told him that I would tell Mama he loved her and he said "Wonderful". Then he went back to dozing in his chair.
When I left...I did tell him, "Adios, don't get lost" which is what Margaret and I always used to say him when he left for work...He repeated, "don't get lost" and smiled.
Then on to see Mama. The podiatrist arrived just ahead of me. I was glad I was there...Mama was sitting in a rocking chair in the hallway right next to her room...there was an aide helping her. She of course was screaming like they were killing her. I got on the floor and held her while he was there...it was just a few minutes. I was able to calm her down...but she was twisting my arms and really hollering...and then when he said he was all done...her eyes got really big and she said "thank you" like he had just given her a gift. It was amazing to see the range of emotions all in twenty seconds. How exhausting/frightening/overwhelming that must be for her.
When he was done, I walked her back to her room, and she laid down. I got her a drink...and sat by her bed. She quickly went into a sleep after grabbing for me frantically and saying...please, please. The aide told me that Mama had had a good morning...eating well, and even sitting out in the main area until the doctor came to see her. When I told Mama that Papa said to say he loved her...her eyes got really big...she smiled and said, Thank you. It connected with her probably more than anything else I said.
That is about all the news on Mama and Papa. My girls are counting the days down for summer. I am counting my days down to be done babysitting...this is my last year of watching kids in my home...I will join Margaret in job searching this summer. I'm sure I'll keep you all posted on anything exciting in that regard.
Lita has been settling into her new place...I hear she met a neighbor yesterday that spent several hours at Lita's house helping her with things and telling Lit all about her fascinating life. She also received a flowering plant and a note from the Welcome Ladies in the neighborhood. They invited her to their monthly ladies luncheon. May's lunch is at Windchimes...Lita RSVP'D yes she would attend...so she is managing to meet some new folks...I'm happy for her. I managed to finally find a new dog walker (the old one wouldn't come to this area). Critter Sitters began this week, and so far, it has worked out very well. Josie loves her mid day walks and this relieves Lita of the stress worrying about Josie especially the days that Bob is out on the road all day.
It was good to visit with Paul this weekend when he came in to see Mom and Pops. Life is about the same for him...working for a livin". His plans to open his own business seem to have hit a rocky patch. He's still hopeful...but searching for some different funding opportunities. Mariah and Jacob are doing well...and Mariah is working hard on Paul to get a dog. They begun research for one that doesn't shed, doesn't bark, doesn't poop much, and doesn't eat much. I'm thinking they might not be getting a dog anytime soon? He had to cancel his plans to join us at the Ranch this year...just wasn't in the budget. Bummer.
Megan has a volleyball tournament this weekend...it is here in Columbus, downtown at the convention center...so if you all decide where and when you are meeting for breakfast let me know...I will do my best to come. If anyone is downtown on Sunday and wants to try to catch some of Megan's v-ball...call my cell phone 783-7717...she plays on and off from about 9am-7pm...I never know the exact schedule until that day when we arrive at tourney site. I do not plan on seeing Mama and Papa this weekend...I think sometimes it can be overwhelming for them. I do plan on going Tuesday morning. So anyone that does go...please feel free to write an update...I love reading everyone's comments. Jenny I'm glad to hear that your visit with Drake went well.
Fran I told both Mama and Papa that you were coming...they both seemed happy.
Love to all.
Kate
Tuesday, May 13, 2008
More on Hospice for Mama
Hi from Tish. Just talked to Lou Basso, minister for Harbor Light Hospice. He saw Mama today and said she was very sweet. He asked a lot of questions about Mama. Mostly wanted to know what her religious beliefs are, where M&P went to church, how devout she is, and also wanted to know if she would enjoy it if he sang to her. I told him to definitely sing songs...I think Mama would love that (Lou is going to take his guitar or mandolin with him the next time). Anyway, I gave him as much information as I could and he may be contacting Kate (Kate, he knows you are primary contact for hospice-related things so he wants to keep you informed). Lou is now going over to see Papa. I told him Papa would enjoy the same things as Mama from a spiritual standpoint.
Kate, regarding medical intervention, my thought is to keep them on those meds that they need to make them comfortable and painless in their final days. Naturally,I am only speaking for myself.
Kate, thanks for the detailed update.
Love, Tish
Kate, regarding medical intervention, my thought is to keep them on those meds that they need to make them comfortable and painless in their final days. Naturally,I am only speaking for myself.
Kate, thanks for the detailed update.
Love, Tish
Hospice Nurse Dawn update
Hi to all...this is Kate.
Thanks Tish for the update on Baby Hugo. I love saying that. So glad that all is going well for Amber and John and family. Happy news is a good thing.
I just got a hold of Dawn A. from Harbor Lights. My messages were going into a voicemail black hole...but finally I got her cell phone number and was able to track her down.
Mama has qualified for hospice, and they received all paperwork...thanks to Tish for helping make that happen. So, hospice care will begin this week. Mama was extremely combative during the assessment and was screaming at Dawn to stop screaming. Dawn explained to Mama that she wasn't screaming and Mama began swatting at her. Dawn talked with the staff at length to get a better assessment of Mama. She said that Mama is still mobile (although I haven't seen much mobility when I visit) which means that Mama is not in End Stage Dementia yet...The staff also said that she is still able to feed herself...but that she forgets to eat so they have to encourage her. Dawn said hospice staff will help with that very much when they visit.
Dawn also said that the doctor has put Mama on Seraquil (sp?) to help with combativeness but that this takes 1-2 weeks before it gets in your system enough to really work. The staff told Dawn that Mama is extremely combative with them 90% of the time. I said that Mama was not as combative with us, although she was sometimes...that she did seem to respond to loving interactions in a much calmer way than she did with assertive interactions. Dawn said the hospice staff would definitely be able to be calmer and take more time with Mama just because it would be one on one time with her, while the Forum staff is trying to help all the other residents also. She acknowledged that it would take time for them to build a trust with Mama but she felt it would happen. I told her that we knew Mama could be a real pain in the ass (there's just no other way to say it)...but that she was also a wonderful mother who deserved to have moments of peace in all of this process. Dawn assured me they would help to give her that. Finally regarding Mama, Dawn did say that with her weight loss, and seeming lack of desire to eat, her decline would occur much more rapidly than it would otherwise.
Then I asked her about Papa. She said she had seen him on Friday, and that Denise would be the nurse out this week, and Dawn would see him again next week. She reviewed Dr. Harris' medicine changes and we discussed the Lasix change. She said that the Lasix was originally increased to get the edema under control, which she said they were all in agreement that it had. But increasing the Lasix also brings on kidney failure more rapidly...it is a diuretic. So more lasix...quicker kidneys shut down. Therefore the reason for decreasing lasix was to help the kidneys...and hopefully the edema will not come back immediately. If it does, it will be up to us and Dr. Harris if we increase Lasix again or say this is final kidney failure and stop.
I asked her about how she would manage his pain...because he would probably be on his deathbed saying he was "fine" or "okay". She said they watch for facial expressions, thrashing, gritting of teeth, and several other symptoms and will begin pain meds as they feel they are needed.
I told her about the fall and the gash in the arm...she did not know about that. Part of me really wants to do whatever we can to help Mama and Papa move on to heaven quicker. This process seems so horrible for them...and I just want them to find the peace that I know they will find in heaven. I think we all need to really assess how we feel about medical interventions for both Mama and Papa and be prepared to voice our thoughts to the doctors. I'm realizing that they won't necessarily come to us with the idea to stop any further medical interventions, we will probably need to go to them. Please share your thoughts.
Love,
Kate
Thanks Tish for the update on Baby Hugo. I love saying that. So glad that all is going well for Amber and John and family. Happy news is a good thing.
I just got a hold of Dawn A. from Harbor Lights. My messages were going into a voicemail black hole...but finally I got her cell phone number and was able to track her down.
Mama has qualified for hospice, and they received all paperwork...thanks to Tish for helping make that happen. So, hospice care will begin this week. Mama was extremely combative during the assessment and was screaming at Dawn to stop screaming. Dawn explained to Mama that she wasn't screaming and Mama began swatting at her. Dawn talked with the staff at length to get a better assessment of Mama. She said that Mama is still mobile (although I haven't seen much mobility when I visit) which means that Mama is not in End Stage Dementia yet...The staff also said that she is still able to feed herself...but that she forgets to eat so they have to encourage her. Dawn said hospice staff will help with that very much when they visit.
Dawn also said that the doctor has put Mama on Seraquil (sp?) to help with combativeness but that this takes 1-2 weeks before it gets in your system enough to really work. The staff told Dawn that Mama is extremely combative with them 90% of the time. I said that Mama was not as combative with us, although she was sometimes...that she did seem to respond to loving interactions in a much calmer way than she did with assertive interactions. Dawn said the hospice staff would definitely be able to be calmer and take more time with Mama just because it would be one on one time with her, while the Forum staff is trying to help all the other residents also. She acknowledged that it would take time for them to build a trust with Mama but she felt it would happen. I told her that we knew Mama could be a real pain in the ass (there's just no other way to say it)...but that she was also a wonderful mother who deserved to have moments of peace in all of this process. Dawn assured me they would help to give her that. Finally regarding Mama, Dawn did say that with her weight loss, and seeming lack of desire to eat, her decline would occur much more rapidly than it would otherwise.
Then I asked her about Papa. She said she had seen him on Friday, and that Denise would be the nurse out this week, and Dawn would see him again next week. She reviewed Dr. Harris' medicine changes and we discussed the Lasix change. She said that the Lasix was originally increased to get the edema under control, which she said they were all in agreement that it had. But increasing the Lasix also brings on kidney failure more rapidly...it is a diuretic. So more lasix...quicker kidneys shut down. Therefore the reason for decreasing lasix was to help the kidneys...and hopefully the edema will not come back immediately. If it does, it will be up to us and Dr. Harris if we increase Lasix again or say this is final kidney failure and stop.
I asked her about how she would manage his pain...because he would probably be on his deathbed saying he was "fine" or "okay". She said they watch for facial expressions, thrashing, gritting of teeth, and several other symptoms and will begin pain meds as they feel they are needed.
I told her about the fall and the gash in the arm...she did not know about that. Part of me really wants to do whatever we can to help Mama and Papa move on to heaven quicker. This process seems so horrible for them...and I just want them to find the peace that I know they will find in heaven. I think we all need to really assess how we feel about medical interventions for both Mama and Papa and be prepared to voice our thoughts to the doctors. I'm realizing that they won't necessarily come to us with the idea to stop any further medical interventions, we will probably need to go to them. Please share your thoughts.
Love,
Kate
Arrival Was Pretty Easy
Yes, according to John, the arrival was relatively easy. Amber was only in labor for a few short hours before she delivered Hugo Alfredo. The midwife told Amber she was made to have babies...oh boy! John also indicated that Amber was probably only about 1 week overdue, not 2 weeks. Anyway, it sounded like both mama and baby were doing great. Marco is trying to get used to Amber's attention now being divided between big brother and little brother.
Regarding the podiatrist visit, Rich has found a network podiatrist who will visit Mama and Papa at the Forum. So that is taken care of.
Kate let us know as soon as you hear how the Hospice assessment went for Mama.
Talk to you all soon. Love, Tish
Regarding the podiatrist visit, Rich has found a network podiatrist who will visit Mama and Papa at the Forum. So that is taken care of.
Kate let us know as soon as you hear how the Hospice assessment went for Mama.
Talk to you all soon. Love, Tish
Monday, May 12, 2008
Baby Hugo has arrived!
Hi to all, this is Kate.
I just talked to Lit, who was talking to John, so she cut me off pretty quickly. But, the baby has arrived, safe and sound. All I know so far is he is healthy, and he is named Hugo. I will write more as I find out more.
Yeah! Happy News!
Paul, Margaret and I visited Mama and Papa yesterday afternoon. Mary and Liti visited in the morning. It was a visit similar to the last several. Papa tried to concentrate...but it was a struggle. He sat up for our visit. Mama was in bed...and was saying more words than she has in a long time. She was very happy to see Paul. She was very overwhelmed with emotion and ranged from smiling, to crying, to being scared. Like I said...it was all status quo. I am waiting on a phone call from hospice...I have a message in to see how the evaluation went, and any updates on Papa.
That's all for now.
Love,
Kate
I just talked to Lit, who was talking to John, so she cut me off pretty quickly. But, the baby has arrived, safe and sound. All I know so far is he is healthy, and he is named Hugo. I will write more as I find out more.
Yeah! Happy News!
Paul, Margaret and I visited Mama and Papa yesterday afternoon. Mary and Liti visited in the morning. It was a visit similar to the last several. Papa tried to concentrate...but it was a struggle. He sat up for our visit. Mama was in bed...and was saying more words than she has in a long time. She was very happy to see Paul. She was very overwhelmed with emotion and ranged from smiling, to crying, to being scared. Like I said...it was all status quo. I am waiting on a phone call from hospice...I have a message in to see how the evaluation went, and any updates on Papa.
That's all for now.
Love,
Kate
Thursday, May 8, 2008
Lita and Kate's visit
Hi to all...this is Kate.
I took the day from babysitting today; Lita and I went to spend the day with Mama and Papa, and we got to squeeze a lunch in between too. It was so nice to not be rushed with our visits. We started with Papa. He was very tired and really just wanted to sleep while we were there, so we just sat and quietly talked while he snoozed. He does sit up quickly when he feels the need to use the restroom (which is often...I've been told this is a result of the Lasix.) He has been told by all of the staff to push the button to get help going to the rest room, but he doesn't. When I was there, I pushed the button for him, but he didn't want to wait, or didn't feel able to wait...not sure which one. Anyway, Papa seemed happy to see us, but didn't really engage in our conversation at all. While there, Nancy pulled me aside to ask my thoughts on stopping some of Papa's "non-essential" meds. I said yes, it was time. After Dr. Harris' visit and consultation with Papa they stopped or lowered six meds. Including Vitamin E, Lipitor, Folic Acid, Megace, Potassium. They are decreasing the Lasix.
After a period of time they will also look at stopping aspirin, beta blockers, and proamitine. Dr. Harris thought Papa looked good...he was mostly zoning in on the fact that his feet and ankles were not swollen like the last time. This was the young Dr. Harris...and he has not seen Papa in several weeks. So...his impression was that Papa was somewhat stable. Papa of course said he was "Fine" when Dr. Harris asked him. To me, Papa seemed to be more withdrawn and very confused. His face was puffy, especially the cheek area and around his eyes. The nurse aide told us Papa had not slept last night, that they had found him wandering the halls. When I asked Papa about this, he was confused. He did say "couldn't sleep". Nancy was going to ask Dr. Harris if we could have a standing order for a sleeping pill when he couldn't sleep. So that is my best update on Papa. Dr. Harris certainly did not indicate that he felt Papa was declining rapidly as I thought he would. I will talk with hospice tomorrow. Papa had jeans on, and could not get them buttoned...we ended up putting sweat pants on him. Margaret...any chance you can get more of these? The staff was sooo happy that we had some sweatpants. The one gal kept thanking me over and over, until I had to come clean and give Margaret credit for buying and delivering them. But they were very thankful for them.
Last note on Papa...there is a notebook in Papa's bedside stand. If you visit, jot a note down in it and read through it. It has notes from family members, Forum staff, and hospice staff. Little tidbits of info are very helpful.
Now for Mama update...They were cleaning her up from a bathroom incident when we got there. She seemed more aware of things than my last two visits...but still very disconnected. She was happy to see Lita and Lit enjoyed rubbing lotion on Mom's hands and arms. Mama did not speak while we were there, except to say...please, please. She was somewhat weepy, but overall very calm. I did pick up her wedding ring, and will keep in a safe place. Don't know who this goes to...Fran? But I will hang to it for now. The best news of the day was that Dr. Harris thought hospice for Mama was an excellent idea...and that it probably is overdue...I wish they would tell us these things without us asking. Anyway, hospice will do evaluation tomorrow on Mama. We will work with the same team that works with Papa.
This will be so wonderful to have someone out several times a week to help Mama. I am very happy about this.
Sandy said that Mama has lost 11 pounds in about six weeks, and just does not have the desire to eat. They do encourage her to eat each meal, and work with her directly to help her eat.
The priest from St. Tim's (Father John) came to visit Mama and Papa today thanks to Liti's phone call, and gave both of them the blessing of the sick. He said to call again if their condition worsens, and he will come right away and administer it again. He did not give them communion, but said they are both on the list to receive communion from the lay person that comes out periodically.
It was a very long day...but so glad to have unrushed, uninterrupted time with both Mama and Papa. And for that matter, it was really nice to have a whole day with Lita too. Lit and I were both drained by the end of the day...but I felt like we made a positive difference in Mama and Papa's day, and for that I was thankful.
Hospice will call me after Mama's evaluation and then I will ask them about Papa too. Will keep you all updated after that. I'm going to go lay on the couch now and have a beer!
Love to you all.
Kate
I took the day from babysitting today; Lita and I went to spend the day with Mama and Papa, and we got to squeeze a lunch in between too. It was so nice to not be rushed with our visits. We started with Papa. He was very tired and really just wanted to sleep while we were there, so we just sat and quietly talked while he snoozed. He does sit up quickly when he feels the need to use the restroom (which is often...I've been told this is a result of the Lasix.) He has been told by all of the staff to push the button to get help going to the rest room, but he doesn't. When I was there, I pushed the button for him, but he didn't want to wait, or didn't feel able to wait...not sure which one. Anyway, Papa seemed happy to see us, but didn't really engage in our conversation at all. While there, Nancy pulled me aside to ask my thoughts on stopping some of Papa's "non-essential" meds. I said yes, it was time. After Dr. Harris' visit and consultation with Papa they stopped or lowered six meds. Including Vitamin E, Lipitor, Folic Acid, Megace, Potassium. They are decreasing the Lasix.
After a period of time they will also look at stopping aspirin, beta blockers, and proamitine. Dr. Harris thought Papa looked good...he was mostly zoning in on the fact that his feet and ankles were not swollen like the last time. This was the young Dr. Harris...and he has not seen Papa in several weeks. So...his impression was that Papa was somewhat stable. Papa of course said he was "Fine" when Dr. Harris asked him. To me, Papa seemed to be more withdrawn and very confused. His face was puffy, especially the cheek area and around his eyes. The nurse aide told us Papa had not slept last night, that they had found him wandering the halls. When I asked Papa about this, he was confused. He did say "couldn't sleep". Nancy was going to ask Dr. Harris if we could have a standing order for a sleeping pill when he couldn't sleep. So that is my best update on Papa. Dr. Harris certainly did not indicate that he felt Papa was declining rapidly as I thought he would. I will talk with hospice tomorrow. Papa had jeans on, and could not get them buttoned...we ended up putting sweat pants on him. Margaret...any chance you can get more of these? The staff was sooo happy that we had some sweatpants. The one gal kept thanking me over and over, until I had to come clean and give Margaret credit for buying and delivering them. But they were very thankful for them.
Last note on Papa...there is a notebook in Papa's bedside stand. If you visit, jot a note down in it and read through it. It has notes from family members, Forum staff, and hospice staff. Little tidbits of info are very helpful.
Now for Mama update...They were cleaning her up from a bathroom incident when we got there. She seemed more aware of things than my last two visits...but still very disconnected. She was happy to see Lita and Lit enjoyed rubbing lotion on Mom's hands and arms. Mama did not speak while we were there, except to say...please, please. She was somewhat weepy, but overall very calm. I did pick up her wedding ring, and will keep in a safe place. Don't know who this goes to...Fran? But I will hang to it for now. The best news of the day was that Dr. Harris thought hospice for Mama was an excellent idea...and that it probably is overdue...I wish they would tell us these things without us asking. Anyway, hospice will do evaluation tomorrow on Mama. We will work with the same team that works with Papa.
This will be so wonderful to have someone out several times a week to help Mama. I am very happy about this.
Sandy said that Mama has lost 11 pounds in about six weeks, and just does not have the desire to eat. They do encourage her to eat each meal, and work with her directly to help her eat.
The priest from St. Tim's (Father John) came to visit Mama and Papa today thanks to Liti's phone call, and gave both of them the blessing of the sick. He said to call again if their condition worsens, and he will come right away and administer it again. He did not give them communion, but said they are both on the list to receive communion from the lay person that comes out periodically.
It was a very long day...but so glad to have unrushed, uninterrupted time with both Mama and Papa. And for that matter, it was really nice to have a whole day with Lita too. Lit and I were both drained by the end of the day...but I felt like we made a positive difference in Mama and Papa's day, and for that I was thankful.
Hospice will call me after Mama's evaluation and then I will ask them about Papa too. Will keep you all updated after that. I'm going to go lay on the couch now and have a beer!
Love to you all.
Kate
Wednesday, May 7, 2008
Two more updates
Hi to all,
After talking with Margaret, Tish and Liti, and then reading Tish's updates...I called the Forum and spoke with Nancy (Director of Papa's facility) and Sandy (Director of Mama's facility). Here is the info.
Nancy said that she has noticed a substantial decline in Papa's health. She requested Dr. Harris to see Papa tomorrow because she wanted him to see how much Papa had declined in a week. She was hesitant to come out and say this...but I asked her point blank...Do you feel Papa is getting very close to death...and she said yes she did feel that. But of course she added that they can never be sure. I have not heard this from hospice...after my visit tomorrow and after hearing what Dr. Harris has to say, I will follow up with a phone call to hospice to get their input. I am taking Lita tomorrow and we will spend most of the morning with Papa and then we will spend the afternoon with Mama. I will find out Dr. Harris' opinion after he sees Papa tomorrow afternoon and will keep everyone posted.
Then I asked Sandy about Mama. I wanted to know her opinion of Mama's overall condition. I asked also what her thoughts were about us getting a hospice evaluation. She said she thought it was an excellent idea...that Mama has lost a substantial amount of weight (she did not say how much)...and that she may qualify on that fact alone. Regarding Mama and eating...I asked her is her lack of eating, lack of ability or a lack of desire? Sandy said they had a speech pathologist do an evaluation on Mama and the opinion was that Mama had not lost the ability to swallow...so this seems to be a lack of desire to eat. She then had a dietary consult...and they are recommending some changes in diet and especially supplements like Ensure. Sandy will discuss all of this with Dr. Harris tomorrow, as well as request the hospice evaluation. Mama will see him in the afternoon.
Sandy also told me that Mama does come out of her room to eat most of the time. That she almost always will eat cereal for breakfast...and then lunch and dinner not so much. She likes fruit and will eat that. She said Mama usually sits in the main room for a period of time after breakfast, but usually will not participate in any activities. She tends to spend the afternoons and evenings in her room, except mealtime.
I think that is all for now...Still waiting for some happy news from John and Amber.
Love,
Kate
After talking with Margaret, Tish and Liti, and then reading Tish's updates...I called the Forum and spoke with Nancy (Director of Papa's facility) and Sandy (Director of Mama's facility). Here is the info.
Nancy said that she has noticed a substantial decline in Papa's health. She requested Dr. Harris to see Papa tomorrow because she wanted him to see how much Papa had declined in a week. She was hesitant to come out and say this...but I asked her point blank...Do you feel Papa is getting very close to death...and she said yes she did feel that. But of course she added that they can never be sure. I have not heard this from hospice...after my visit tomorrow and after hearing what Dr. Harris has to say, I will follow up with a phone call to hospice to get their input. I am taking Lita tomorrow and we will spend most of the morning with Papa and then we will spend the afternoon with Mama. I will find out Dr. Harris' opinion after he sees Papa tomorrow afternoon and will keep everyone posted.
Then I asked Sandy about Mama. I wanted to know her opinion of Mama's overall condition. I asked also what her thoughts were about us getting a hospice evaluation. She said she thought it was an excellent idea...that Mama has lost a substantial amount of weight (she did not say how much)...and that she may qualify on that fact alone. Regarding Mama and eating...I asked her is her lack of eating, lack of ability or a lack of desire? Sandy said they had a speech pathologist do an evaluation on Mama and the opinion was that Mama had not lost the ability to swallow...so this seems to be a lack of desire to eat. She then had a dietary consult...and they are recommending some changes in diet and especially supplements like Ensure. Sandy will discuss all of this with Dr. Harris tomorrow, as well as request the hospice evaluation. Mama will see him in the afternoon.
Sandy also told me that Mama does come out of her room to eat most of the time. That she almost always will eat cereal for breakfast...and then lunch and dinner not so much. She likes fruit and will eat that. She said Mama usually sits in the main room for a period of time after breakfast, but usually will not participate in any activities. She tends to spend the afternoons and evenings in her room, except mealtime.
I think that is all for now...Still waiting for some happy news from John and Amber.
Love,
Kate
Postscript
Hi from Tish:
Just heard from Sandy @ Forum (1:32 p.m.). Sandy indicated that Dr. Harris did notice Mama's drooping eye/face last week when he checked her. Dr. Harris indicated that it was part of dementia and not stroke. If we want to have Dr. Harris visit again, we need to let Forum know.
Also, staff noticed that Mama kept taking her wedding ring off (I did notice she was fidgeting a lot w/ it yesterday), so they removed it and have it stored in the Med Cart. Kate, when you visit tomorrow, could you take it home and keep it at your house. Think it's better if one of us keeps it at our house.
That's all for now.
Love, T.
Just heard from Sandy @ Forum (1:32 p.m.). Sandy indicated that Dr. Harris did notice Mama's drooping eye/face last week when he checked her. Dr. Harris indicated that it was part of dementia and not stroke. If we want to have Dr. Harris visit again, we need to let Forum know.
Also, staff noticed that Mama kept taking her wedding ring off (I did notice she was fidgeting a lot w/ it yesterday), so they removed it and have it stored in the Med Cart. Kate, when you visit tomorrow, could you take it home and keep it at your house. Think it's better if one of us keeps it at our house.
That's all for now.
Love, T.
Hump Day...Update on M&P
Hi from Tish (12:47 p.m. 5/7/08)
Visited Mama & Papa yesterday. Michael had been to see both and Margaret was there (Margaret had taken fruit to Mama & helped her eat it). Papa's arm looked pretty torn apart. Forum had put a transparent bandage on it, so you could see how bad the rip was. Papa was tired, but he was hearing well so Margaret and I were able to talk to him. We talked a bit about Mama and I asked if Papa wanted to continue visiting her 3 x week. He indicated no, it was too much. I told the Forum they should only take him once a week and only if he is able to go. Margaret left a bunch of notes for Hospice in the notebook.
Mama is deterioriating. The left side of her face (particularly left eye) looks droopy. And now she is shaking her hands a bunch. I mentioned it to the nurse and asked her to make note in Mama's chart. The RN indicated this is part of the dementia stating that this was an indication that the motor-neurons were not working. Margaret, regarding the bruise, the nurse indicated she had no idea what may have caused bruise and that the bruising was not noted in chart. I asked that it be noted. Mama's speech abilities also seems to be deteriorating...I'm sure some of you have also noted this.
Oh well, sorry I don't have any good news. I'm waiting to hear the good news about John and Amber's baby. Love, T.
p.s. Mary, happy birthday.
Visited Mama & Papa yesterday. Michael had been to see both and Margaret was there (Margaret had taken fruit to Mama & helped her eat it). Papa's arm looked pretty torn apart. Forum had put a transparent bandage on it, so you could see how bad the rip was. Papa was tired, but he was hearing well so Margaret and I were able to talk to him. We talked a bit about Mama and I asked if Papa wanted to continue visiting her 3 x week. He indicated no, it was too much. I told the Forum they should only take him once a week and only if he is able to go. Margaret left a bunch of notes for Hospice in the notebook.
Mama is deterioriating. The left side of her face (particularly left eye) looks droopy. And now she is shaking her hands a bunch. I mentioned it to the nurse and asked her to make note in Mama's chart. The RN indicated this is part of the dementia stating that this was an indication that the motor-neurons were not working. Margaret, regarding the bruise, the nurse indicated she had no idea what may have caused bruise and that the bruising was not noted in chart. I asked that it be noted. Mama's speech abilities also seems to be deteriorating...I'm sure some of you have also noted this.
Oh well, sorry I don't have any good news. I'm waiting to hear the good news about John and Amber's baby. Love, T.
p.s. Mary, happy birthday.
Tuesday, May 6, 2008
Tuesday Postscript: Call from Forum Re Papa
Note from Tish (1:15 p.m.)
Just heard from Forum. Pops fell down trying to get to the bathroom. He did not really hurt himself except he has a skin tear on his arm. No broken bones. They reminded him to use the "help call" buzzer to ask for assistance but know that he will probably not remember to do that. I asked that someone check on him every hour to make sure he does not need to use restroom and to just do a check. Was told that hospice had just left less than 1/2 hour before Papa's fall, so they did not think they would need to check on Pops so soon after the hospice visit.
Just thought you should all know latest. Love, T.
Just heard from Forum. Pops fell down trying to get to the bathroom. He did not really hurt himself except he has a skin tear on his arm. No broken bones. They reminded him to use the "help call" buzzer to ask for assistance but know that he will probably not remember to do that. I asked that someone check on him every hour to make sure he does not need to use restroom and to just do a check. Was told that hospice had just left less than 1/2 hour before Papa's fall, so they did not think they would need to check on Pops so soon after the hospice visit.
Just thought you should all know latest. Love, T.
Days Fly By...Already Tuesday
Note from Tish (5/6/08)
Thanks for update Jen. Make sure you let us know where Drake's next address will be so that we can all send him cards/letters. Cannot believe Amber has not had that baby yet.
Kate, Mary and I spent all day w/ Lit & Bob at their new house helping them with final unpacking (Jason and his buddy and a friend of Bob's were also helping). Worked in the kitchen, bathroom, master bedroom, living room and dining room. We all got a lot done and had loads of fun at same time. It's just so good to see Lit and Bob moved to a new home that will help Lit live a little bit more idependently again. Hurray. Plus the condo and the area (almost overlooking Scioto River) is really very pretty to look at.
Lit has become quite the hotrodder in her electric wheelchair. No, truly, she is getting around pretty well in the chair.
Don't have much personal news to share. Same old (like Fran's recent entry).
Will be visiting Mama & Papa today. Taking some time off from work to spend time w/ both. Mags, I have a call in to nurse about bruises. She has yet to return my call.
Kate, we are still waiting to see Meg's prom pics.
Love to all, T.
Thanks for update Jen. Make sure you let us know where Drake's next address will be so that we can all send him cards/letters. Cannot believe Amber has not had that baby yet.
Kate, Mary and I spent all day w/ Lit & Bob at their new house helping them with final unpacking (Jason and his buddy and a friend of Bob's were also helping). Worked in the kitchen, bathroom, master bedroom, living room and dining room. We all got a lot done and had loads of fun at same time. It's just so good to see Lit and Bob moved to a new home that will help Lit live a little bit more idependently again. Hurray. Plus the condo and the area (almost overlooking Scioto River) is really very pretty to look at.
Lit has become quite the hotrodder in her electric wheelchair. No, truly, she is getting around pretty well in the chair.
Don't have much personal news to share. Same old (like Fran's recent entry).
Will be visiting Mama & Papa today. Taking some time off from work to spend time w/ both. Mags, I have a call in to nurse about bruises. She has yet to return my call.
Kate, we are still waiting to see Meg's prom pics.
Love to all, T.
Friday, May 2, 2008
Friday Update
Hi everyone - it's Margaret.
I saw both Mama and Papa today. Mama was not very good. She was on her bed crying and could only say, "Oh please, oh please." I asked her if she would like a drink and she managed to say, "Water." She had trouble using the straw and trouble swallowing; however, she did drink an entire glass of water. I was told that she had only eaten some fruit since she got up this morning; I wasn't successful in getting her to eat anything else. She seemed quite agitated and didn't really respond to me; I don't know if she recognized me as a family member or not. I asked about the bruising on her face and the huge bruise on her arm (these are old bruises and I suspect they happened last weekend), but the aides didn't know. Tish, did you ever get a chance to ask the nurse about the bruises?
I then went to see Papa. He was sleeping in his chair with the oxygen on. I brought him the two pairs of lightweight sweat pants that I got for him, but he was not able to try them on. I hung them on hangers and put them on the door handle of his closet so that he wouldn't forget about them tomorrow. His face looked swollen to me, but his hands and feet looked good. He had trouble speaking coherently. I noticed there was no water in the plastic bottle on his oxygen pump and checked with the nurse about that. I have written some notes in the notebook in Papa's bedside stand regarding the filling of this bottle with distilled water to help keep the oxygen moister so that Papa's nose doesn't get too dried out.
I reviewed the family news about Drake finishing his training, Liti and Bob's move, no birth yet for Amber and John (I spoke very briefly with Amber this morning, she is coping with her ongoing pregnancy so much better than I would), me getting more assistance, etc. He seemed happy to hear these things, but I am not sure how much he actually took in. It was nice having some cheerful stuff to talk about!
Papa is getting to the point where he isn't anxious to go see Mama. I think this is one of the letting go steps. It is quickly getting to be too much for him. He did not go today. I suggested that the staff call over to see how Mama is doing, before sending Papa over to see her. Even though he is only scheduled to visit three times a week now, it is horrible for him to make that physical effort only to have her either so doped she doesn't know he is there or to have her not recognize him.
I will be in Athens with Ken this weekend (back Sunday at noon); the boys will be here with their sitter, Danny. Mikey and Alex each have their first baseball games on Saturday.
That's my Friday update. Hope everyone has a pleasant and productive weekend!
Love from your favorite
Margaret
I saw both Mama and Papa today. Mama was not very good. She was on her bed crying and could only say, "Oh please, oh please." I asked her if she would like a drink and she managed to say, "Water." She had trouble using the straw and trouble swallowing; however, she did drink an entire glass of water. I was told that she had only eaten some fruit since she got up this morning; I wasn't successful in getting her to eat anything else. She seemed quite agitated and didn't really respond to me; I don't know if she recognized me as a family member or not. I asked about the bruising on her face and the huge bruise on her arm (these are old bruises and I suspect they happened last weekend), but the aides didn't know. Tish, did you ever get a chance to ask the nurse about the bruises?
I then went to see Papa. He was sleeping in his chair with the oxygen on. I brought him the two pairs of lightweight sweat pants that I got for him, but he was not able to try them on. I hung them on hangers and put them on the door handle of his closet so that he wouldn't forget about them tomorrow. His face looked swollen to me, but his hands and feet looked good. He had trouble speaking coherently. I noticed there was no water in the plastic bottle on his oxygen pump and checked with the nurse about that. I have written some notes in the notebook in Papa's bedside stand regarding the filling of this bottle with distilled water to help keep the oxygen moister so that Papa's nose doesn't get too dried out.
I reviewed the family news about Drake finishing his training, Liti and Bob's move, no birth yet for Amber and John (I spoke very briefly with Amber this morning, she is coping with her ongoing pregnancy so much better than I would), me getting more assistance, etc. He seemed happy to hear these things, but I am not sure how much he actually took in. It was nice having some cheerful stuff to talk about!
Papa is getting to the point where he isn't anxious to go see Mama. I think this is one of the letting go steps. It is quickly getting to be too much for him. He did not go today. I suggested that the staff call over to see how Mama is doing, before sending Papa over to see her. Even though he is only scheduled to visit three times a week now, it is horrible for him to make that physical effort only to have her either so doped she doesn't know he is there or to have her not recognize him.
I will be in Athens with Ken this weekend (back Sunday at noon); the boys will be here with their sitter, Danny. Mikey and Alex each have their first baseball games on Saturday.
That's my Friday update. Hope everyone has a pleasant and productive weekend!
Love from your favorite
Margaret
Thursday, May 1, 2008
Thursday update
Hi from Kate...
Dawn from Hospice called with an update on Papa. She did not see him today, but an aide, Katherine saw him...and called Dawn somewhat concerned that Papa's stomach was quite distended. Dawn was calling another nurse out to check Papa out, and said she would keep me posted. She said this is another step in Papa's kidney failure...indicating his stomach is filling with fluid. She asked if we could buy Papa some more sweat pants, as he won't be able to fit into his button up/zip up pants. I am planning on going shopping for them after my babysitting kids get picked up at 5pm tonight. I'll bring them over tonight or tomorrow.
I asked what we should expect next. Dawn said his hands, ankles and face would swell again as the edema becomes worse. She did not indicate any type of timeline and was very calm through the conversation.
Big sigh...that's all for now.
Love,
Kate
Dawn from Hospice called with an update on Papa. She did not see him today, but an aide, Katherine saw him...and called Dawn somewhat concerned that Papa's stomach was quite distended. Dawn was calling another nurse out to check Papa out, and said she would keep me posted. She said this is another step in Papa's kidney failure...indicating his stomach is filling with fluid. She asked if we could buy Papa some more sweat pants, as he won't be able to fit into his button up/zip up pants. I am planning on going shopping for them after my babysitting kids get picked up at 5pm tonight. I'll bring them over tonight or tomorrow.
I asked what we should expect next. Dawn said his hands, ankles and face would swell again as the edema becomes worse. She did not indicate any type of timeline and was very calm through the conversation.
Big sigh...that's all for now.
Love,
Kate
Tuesday, April 29, 2008
It's been awhile...
Hi Cabrera's...it's Kate.
Let's see quick update on Mama and Papa, and then I'll tell you all about the prom!!! Mama had a hard weekend, Tish received a phone call on Saturday saying that Mama was in a rage and was biting, kicking, scratching, and screaming. They were waiting for approval for an injectable sedatitive. She has become combative with the staff on several occasions...sometimes about taking her medication, sometimes about seemingly nothing at all. Most of me is sad about this...but I have to say that part of me is proud of Mama for still having a fighting spirit. I feel like she is battling so many things right now...and how frustrating it all must be. So, while I don't want her to hurt herself or others, I'm glad that her spirit is still willful. Does that seem crazy?
Well then, I saw Mama on Sunday. She was in bed and mostly unresponsive. She only opened one eye. I noticed that her right side seemed somewhat weak, her hand and arm are limp, she had trouble drinking water...using only half of her mouth. Margaret has asked for Dr. Harris to see her on Thursday when he does his rounds. Mama didn't really respond much to me, she smiled when I told her I loved her, and I stroked her face and hair. She cried a bit on and off. I always let her cry...it seems like she needs the release of emotion. Who knows what is the right thing to do??? After staying for about a half hour, I left as she dozed. She waved to me when I left, I blew her a kiss and she smiled again.
I also saw Papa on Sunday. He was in a sound sleep, and did not wake up as I kissed him. I sat with him for a few minutes and then left, telling him I loved him. He never woke up, or responded...I felt his sleep was more important than my visit.
I heard from Liti about a visit she had with Mama and Papa on Sunday. She said Mama was very weepy and was begging them not to leave her. This must have been incredibly hard. She said Papa had labored breathing, but did not want the oxygen when she offered it. She said Papa was weak and the visit didn't last long.
I went back today (Tuesday morning). I heard from Margaret that Papa had seen Mama yesterday for an hour. I saw Papa first today. When I arrived he was standing in his room, looking quite unsteady. He had his oxygen tubes in, and was attached to the tank as he was walking toward the bathroom. The cord stretches plenty, but I was afraid he was going to trip and fall as the cord was getting caught on the walker. After using the restroom, he wanted to go back to bed, but was disoriented where the bed was. I helped him get to bed, and asked him if he wanted a drink. It took some time for the words to form, but "root beer" finally came out. He drank well with a straw. And then he went to sleep. I sat for awhile and told him I loved him...trying so hard to only send out positive calm energy. I was willing my tears and sadness not to come through...Hopefully he felt the good stuff. He was weak, but seemed glad to have seen me. I was glad I went. I told him that all of his kids love him so much, even the ones that can't come see him a lot. He smiled and said "okay". That's pretty much the only word I get out of him these days.
I asked the front desk worker, Jane, to make sure the staff knows to check in on Papa while he is in his room. I am fearful he will fall. She said he is a favorite there, and that many of the staff check in on him as they walk by.
I wish I had some happy news to report about Mama and Papa. I encourage everyone to share their experiences with them...it's hard to remember what everyone has told me, and I often miscommunicate things...so please share...all news...fun and trivial, or sad and serious...or even in between is good.
I haven't heard any word on John and Amber and the newest little Cabrera. Will keep you posted if you I do. Please remember to read the old comments, I know that Jessica commented on the last blog just yesterday. And Jenny, if you read this...there have been at least two questions about Drake in the comment section. Any word on how he is doing?
Liti and Bob closed on both places, and the movers will come Weds. The movers will just move everything to the new place, and then Saturday is the day for real organization. I plan on going over Saturday at 10am to help set up, organize. I think that Mary was also going to help decorate? If anyone else is available, please call to let me know you want to volunteer. (792-3809) I can get you address and details. Bob and Lita hope to use Saturday as the day to get furniture where they want it, and really set-up house. I'm sure Bob could use at least one more set of strong muscles. Lita was hoping that Jason would come help also...don't know if that panned out or not.
Lastly, the prom...let's see I'm almost out of time now...so I'll be short. Saturday morning the whole family went to help do set-up. The Prom was at Promo West Lifestyle Pavilion. The theme was Mardi Gras...and Junior Student Council was responsible for all decorations. The kids have worked so hard on this, and it was incredible. I couldn't believe the details that they all thought of...Handmade street signs, vibrant colors, jester hats, plants, street lights, it was unbelievable! After working with one mom for about twenty minutes (we'd introduced ourselves by first names)...she asked me who's mom I was...and when I told her, she laughed and said her son was going to the prom with Megan. It was an incredibly fun day to see Megan in her element...having so much fun with her buds, and working really hard to make the it all come together. And when we left, she came home to get ready. Pictures were taken at a golf course...32 kids were in her group...and Jena and Nicole loved seeing all the beautiful dresses.
Megan's date was not only very nice...he was so cute!!! (I'm sure she's rolling her eyes if she's reading this) They were, by far, the best looking couple in the group...(there go the eyes again). Megan's dress was a full length, red dress with a very simple, elegant design. I promise to post pictures as soon as I can get Megan and the computer to cooperate. She wore her hair half up...and the long part curled. Poofed on top just a bit. Her shoes and purse were glittery silver, which matched the beaded accessory on the dress. She was GORGEOUS! I felt very happy for her to be a part of something so fun, and I was so happy that I could share the day with her.
After picture taking...the kids all left for dinner and the prom...and I have only gotten to hear little snippets of information about the prom itself. But everything I hear from kids and parents, and staff is that this was the best prom ever! It felt good to have something so trivially happy in my life, and it was a very good day. I can't believe that my girls are growing up so much!
I think that is all for now. Please share all of your news.
Love,
Kate
Let's see quick update on Mama and Papa, and then I'll tell you all about the prom!!! Mama had a hard weekend, Tish received a phone call on Saturday saying that Mama was in a rage and was biting, kicking, scratching, and screaming. They were waiting for approval for an injectable sedatitive. She has become combative with the staff on several occasions...sometimes about taking her medication, sometimes about seemingly nothing at all. Most of me is sad about this...but I have to say that part of me is proud of Mama for still having a fighting spirit. I feel like she is battling so many things right now...and how frustrating it all must be. So, while I don't want her to hurt herself or others, I'm glad that her spirit is still willful. Does that seem crazy?
Well then, I saw Mama on Sunday. She was in bed and mostly unresponsive. She only opened one eye. I noticed that her right side seemed somewhat weak, her hand and arm are limp, she had trouble drinking water...using only half of her mouth. Margaret has asked for Dr. Harris to see her on Thursday when he does his rounds. Mama didn't really respond much to me, she smiled when I told her I loved her, and I stroked her face and hair. She cried a bit on and off. I always let her cry...it seems like she needs the release of emotion. Who knows what is the right thing to do??? After staying for about a half hour, I left as she dozed. She waved to me when I left, I blew her a kiss and she smiled again.
I also saw Papa on Sunday. He was in a sound sleep, and did not wake up as I kissed him. I sat with him for a few minutes and then left, telling him I loved him. He never woke up, or responded...I felt his sleep was more important than my visit.
I heard from Liti about a visit she had with Mama and Papa on Sunday. She said Mama was very weepy and was begging them not to leave her. This must have been incredibly hard. She said Papa had labored breathing, but did not want the oxygen when she offered it. She said Papa was weak and the visit didn't last long.
I went back today (Tuesday morning). I heard from Margaret that Papa had seen Mama yesterday for an hour. I saw Papa first today. When I arrived he was standing in his room, looking quite unsteady. He had his oxygen tubes in, and was attached to the tank as he was walking toward the bathroom. The cord stretches plenty, but I was afraid he was going to trip and fall as the cord was getting caught on the walker. After using the restroom, he wanted to go back to bed, but was disoriented where the bed was. I helped him get to bed, and asked him if he wanted a drink. It took some time for the words to form, but "root beer" finally came out. He drank well with a straw. And then he went to sleep. I sat for awhile and told him I loved him...trying so hard to only send out positive calm energy. I was willing my tears and sadness not to come through...Hopefully he felt the good stuff. He was weak, but seemed glad to have seen me. I was glad I went. I told him that all of his kids love him so much, even the ones that can't come see him a lot. He smiled and said "okay". That's pretty much the only word I get out of him these days.
I asked the front desk worker, Jane, to make sure the staff knows to check in on Papa while he is in his room. I am fearful he will fall. She said he is a favorite there, and that many of the staff check in on him as they walk by.
I wish I had some happy news to report about Mama and Papa. I encourage everyone to share their experiences with them...it's hard to remember what everyone has told me, and I often miscommunicate things...so please share...all news...fun and trivial, or sad and serious...or even in between is good.
I haven't heard any word on John and Amber and the newest little Cabrera. Will keep you posted if you I do. Please remember to read the old comments, I know that Jessica commented on the last blog just yesterday. And Jenny, if you read this...there have been at least two questions about Drake in the comment section. Any word on how he is doing?
Liti and Bob closed on both places, and the movers will come Weds. The movers will just move everything to the new place, and then Saturday is the day for real organization. I plan on going over Saturday at 10am to help set up, organize. I think that Mary was also going to help decorate? If anyone else is available, please call to let me know you want to volunteer. (792-3809) I can get you address and details. Bob and Lita hope to use Saturday as the day to get furniture where they want it, and really set-up house. I'm sure Bob could use at least one more set of strong muscles. Lita was hoping that Jason would come help also...don't know if that panned out or not.
Lastly, the prom...let's see I'm almost out of time now...so I'll be short. Saturday morning the whole family went to help do set-up. The Prom was at Promo West Lifestyle Pavilion. The theme was Mardi Gras...and Junior Student Council was responsible for all decorations. The kids have worked so hard on this, and it was incredible. I couldn't believe the details that they all thought of...Handmade street signs, vibrant colors, jester hats, plants, street lights, it was unbelievable! After working with one mom for about twenty minutes (we'd introduced ourselves by first names)...she asked me who's mom I was...and when I told her, she laughed and said her son was going to the prom with Megan. It was an incredibly fun day to see Megan in her element...having so much fun with her buds, and working really hard to make the it all come together. And when we left, she came home to get ready. Pictures were taken at a golf course...32 kids were in her group...and Jena and Nicole loved seeing all the beautiful dresses.
Megan's date was not only very nice...he was so cute!!! (I'm sure she's rolling her eyes if she's reading this) They were, by far, the best looking couple in the group...(there go the eyes again). Megan's dress was a full length, red dress with a very simple, elegant design. I promise to post pictures as soon as I can get Megan and the computer to cooperate. She wore her hair half up...and the long part curled. Poofed on top just a bit. Her shoes and purse were glittery silver, which matched the beaded accessory on the dress. She was GORGEOUS! I felt very happy for her to be a part of something so fun, and I was so happy that I could share the day with her.
After picture taking...the kids all left for dinner and the prom...and I have only gotten to hear little snippets of information about the prom itself. But everything I hear from kids and parents, and staff is that this was the best prom ever! It felt good to have something so trivially happy in my life, and it was a very good day. I can't believe that my girls are growing up so much!
I think that is all for now. Please share all of your news.
Love,
Kate
Thursday, April 24, 2008
Message from Dawn @ Hospice
Note from Tish, Thursday, 3:30 p.m.
Dawn just called from The Forum. She was alarmed @ how exhausted Papa was. He could barely open his eyes for her and could not really sit up or respond to her questions. She said he was just plain exhausted. She asked the Forum staff if that was how he seemed typically and they indicated yes. Based on this, Dawn is recommending that Papa's visits to Mama be limited to 3 x week and 1 hour per visit. If Papa is having a really good day and indicates that he wants to see Mama (on a non-scheduled day) Forum will take him to see her. Dawn hopes that this reduced schedule will help boost Papa's energy level. I agreed to this. Hope everyone is OK w/ this, but if it's best for Papa...
They did mention to Mama that Papa would not be coming and indicated that Mama was having a day where she did not seem to know who Papa was.
On the brighter side, Dawn mentioned that Papa's Edema is much better. He only has a little bit under his eye and his hand is not as swollen. So the Lasix is doing a good job.
Love to you all, T.
Dawn just called from The Forum. She was alarmed @ how exhausted Papa was. He could barely open his eyes for her and could not really sit up or respond to her questions. She said he was just plain exhausted. She asked the Forum staff if that was how he seemed typically and they indicated yes. Based on this, Dawn is recommending that Papa's visits to Mama be limited to 3 x week and 1 hour per visit. If Papa is having a really good day and indicates that he wants to see Mama (on a non-scheduled day) Forum will take him to see her. Dawn hopes that this reduced schedule will help boost Papa's energy level. I agreed to this. Hope everyone is OK w/ this, but if it's best for Papa...
They did mention to Mama that Papa would not be coming and indicated that Mama was having a day where she did not seem to know who Papa was.
On the brighter side, Dawn mentioned that Papa's Edema is much better. He only has a little bit under his eye and his hand is not as swollen. So the Lasix is doing a good job.
Love to you all, T.
Wednesday, April 23, 2008
Tuesday: Minor News From Forum Re Pops
Hi from Tish 4/23/08 2:15 p.m.
Hi everyone. Got a call from Forum yesterday. They have a visiting podiatrist and wanted approval for Papa to receive a visit from their podiatrist. Would be a monthly visit for minor care such as toenail trimming and general care of feet. I gave approval, but then learned later that the podiatrist was not a participating provider in Mama & Papa's HMO. Therefore, Rich is looking into the insurance issue to see who is on the participating podiatrist list. Rich, based on convenience factor, it may be good idea to go ahead & use the Forum's podiatrist. Not sure what the penalty would be for using a non-participating physician, but I thought I would throw that out there for consideration. I just think that (going forward) getting Mama & Papa to outside doctors' appointments is going to be challenging at best.
Kate, I'll have to touch base w/ you to see how you did w/ the prom dress search.
Also, was talking to Liti about trying to get together for dinner one night during the week. Know how tough it is for all, but would love to do this w/ those who can join us for dinner. Maybe we should try for this once Liti & Bob have their move under their belts and J & A's baby arrives.
Well, just wanted to keep you all up to date. Hope all is well w/ all of you.
Love, T.
Hi everyone. Got a call from Forum yesterday. They have a visiting podiatrist and wanted approval for Papa to receive a visit from their podiatrist. Would be a monthly visit for minor care such as toenail trimming and general care of feet. I gave approval, but then learned later that the podiatrist was not a participating provider in Mama & Papa's HMO. Therefore, Rich is looking into the insurance issue to see who is on the participating podiatrist list. Rich, based on convenience factor, it may be good idea to go ahead & use the Forum's podiatrist. Not sure what the penalty would be for using a non-participating physician, but I thought I would throw that out there for consideration. I just think that (going forward) getting Mama & Papa to outside doctors' appointments is going to be challenging at best.
Kate, I'll have to touch base w/ you to see how you did w/ the prom dress search.
Also, was talking to Liti about trying to get together for dinner one night during the week. Know how tough it is for all, but would love to do this w/ those who can join us for dinner. Maybe we should try for this once Liti & Bob have their move under their belts and J & A's baby arrives.
Well, just wanted to keep you all up to date. Hope all is well w/ all of you.
Love, T.
Monday, April 21, 2008
Weekend Update
Hi...this is Kate.
Fran was in for the weekend, and she, Mary and Tish went to see Mama and Papa. The update that I got from Fran sounded like Mama and Papa were holding their own, but not great. Papa was not swollen, but was very weak and very tired. He could not go see Mama but wanted to visit with her, so they brought Mama to Papa. Mama was not very responsive and I understand the visit was sad for all.
Mary and Fran were able to go buy Mama some clothes...they had hoped to take her out to do this with them, but that just wasn't workable. They also were able to bring Papa some food from Bravo, which he seemed to really like. (Again, he wasn't interested in going with them, but enjoyed the food they brought to him).
The sisters all met for breakfast at Bob Evans on Saturday, and that was very enjoyable...maybe next time the brothers can join us? You know that we talk about whoever doesn't show up ?!?! That is the rule :):):)
I will visit Mama and Papa tomorrow and will update from my perspective. Fran was quite down after her visit and felt that Papa was really fading. Mama is struggling quite a bit with eating now...and really requires much help during mealtime. If you visit her, please make sure to offer her a drink of water, I don't think she is getting enough liquids, and this has also been a concern of Margaret's.
The pictures are great Jason...My favorites are the ones from the 80's with the big hairdos...We were styling! Hoping to hear news from John and Amber soon about little Hugo (if that is still the name they choose). And Liti and Bob should be closing this week on both houses...keep them in your prayers that all goes uneventfully! We will be looking for volunteers to help organize the new house on Saturday May 3, and I'm sure they could probably use help Sunday, May 4 as well. Movers will be doing the big move, but they will need assistance moving furniture to the right places and decorating, and setting up. (Debbie this organizing sounds right up your alley :) Speaking of that...Debbie is your website up and going for Clutterbye? Please post it when it is, so we can all check it out.
I think that is all for now...I'm off to run my girls to all of their activities for the next two hours and then Megan and I are heading to Polaris to make one last ditch effort to find a reasonably cheap prom dress...PRAY FOR US!!!
Love to all...
Kate
Fran was in for the weekend, and she, Mary and Tish went to see Mama and Papa. The update that I got from Fran sounded like Mama and Papa were holding their own, but not great. Papa was not swollen, but was very weak and very tired. He could not go see Mama but wanted to visit with her, so they brought Mama to Papa. Mama was not very responsive and I understand the visit was sad for all.
Mary and Fran were able to go buy Mama some clothes...they had hoped to take her out to do this with them, but that just wasn't workable. They also were able to bring Papa some food from Bravo, which he seemed to really like. (Again, he wasn't interested in going with them, but enjoyed the food they brought to him).
The sisters all met for breakfast at Bob Evans on Saturday, and that was very enjoyable...maybe next time the brothers can join us? You know that we talk about whoever doesn't show up ?!?! That is the rule :):):)
I will visit Mama and Papa tomorrow and will update from my perspective. Fran was quite down after her visit and felt that Papa was really fading. Mama is struggling quite a bit with eating now...and really requires much help during mealtime. If you visit her, please make sure to offer her a drink of water, I don't think she is getting enough liquids, and this has also been a concern of Margaret's.
The pictures are great Jason...My favorites are the ones from the 80's with the big hairdos...We were styling! Hoping to hear news from John and Amber soon about little Hugo (if that is still the name they choose). And Liti and Bob should be closing this week on both houses...keep them in your prayers that all goes uneventfully! We will be looking for volunteers to help organize the new house on Saturday May 3, and I'm sure they could probably use help Sunday, May 4 as well. Movers will be doing the big move, but they will need assistance moving furniture to the right places and decorating, and setting up. (Debbie this organizing sounds right up your alley :) Speaking of that...Debbie is your website up and going for Clutterbye? Please post it when it is, so we can all check it out.
I think that is all for now...I'm off to run my girls to all of their activities for the next two hours and then Megan and I are heading to Polaris to make one last ditch effort to find a reasonably cheap prom dress...PRAY FOR US!!!
Love to all...
Kate
Sunday, April 20, 2008
Cabrera Old Family Pictures UPDATED
Got a small handful of pictures scanned. I uploaded them into the account. Feel free to check out the new (old) pictures. Mostly circa 80s & 90s.
Cabrera Old Family Pictures
http://s223.photobucket.com/albums/dd75/RavinVsFlud/Cabrera%20Family%20Pictures/?start=all
Love,
Jas
Cabrera Old Family Pictures
http://s223.photobucket.com/albums/dd75/RavinVsFlud/Cabrera%20Family%20Pictures/?start=all
Love,
Jas
Friday, April 18, 2008
TGIF
Note from Tish, 12:15 p.m. Friday: John, my thoughts are w/ you & Amber. We can hardly wait to see the new arrival. I just hope the labor and delivery go well. Am looking forward to seeing those who can meet for breakfast tomorrow a.m. Fran, it will be good to see you. It's been too long.
Did occur to me...I told Jeami to start saving her pennies so that she could afford flight home. You know just in case. Let's discuss this tomorrow a.m during breakfast. No way are you shouldering this financial burden yourself, Fran.
Will see everyone tomorrow. Love, T.
Did occur to me...I told Jeami to start saving her pennies so that she could afford flight home. You know just in case. Let's discuss this tomorrow a.m during breakfast. No way are you shouldering this financial burden yourself, Fran.
Will see everyone tomorrow. Love, T.
Thursday, April 17, 2008
Thursday night
Hi to all,
I just spend 40 minutes writing an update in the comments section of Tish blog...and then I hit the wrong button and lost the whole thing...UGGH! I hate computers sometimes. I had a visit with Mama and Papa today that was not great, but not horrible. They were both extremely tired and not really interested in visiting.
I will definitely be there on Saturday morning for breakfast. I made sure Lita heard about is as well. She said she and Bob would come by too...Bob probably won't stay long, but I told her that we would find her a ride home so she could stay. I'll update more tomorrow...I don't have it in me to re-write everything again.
Hope all is well with everyone. I so enjoy reading all of the comments, I hope everyone keeps it up. The fun stories and updates are the best. Please keep them coming. I want to hear about everyone...not just Mama and Papa.
Will write more tomorrow and hope to see some of you Saturday morning.
Love to all,
Kate
I just spend 40 minutes writing an update in the comments section of Tish blog...and then I hit the wrong button and lost the whole thing...UGGH! I hate computers sometimes. I had a visit with Mama and Papa today that was not great, but not horrible. They were both extremely tired and not really interested in visiting.
I will definitely be there on Saturday morning for breakfast. I made sure Lita heard about is as well. She said she and Bob would come by too...Bob probably won't stay long, but I told her that we would find her a ride home so she could stay. I'll update more tomorrow...I don't have it in me to re-write everything again.
Hope all is well with everyone. I so enjoy reading all of the comments, I hope everyone keeps it up. The fun stories and updates are the best. Please keep them coming. I want to hear about everyone...not just Mama and Papa.
Will write more tomorrow and hope to see some of you Saturday morning.
Love to all,
Kate
Closing in on Weekend
Note from Tish 4/17/08, 11:50 a.m.: Update on Mama & Papa. Visited both yesterday afternoon. Papa spent afternoon w/ Mama & was just returning to his apartment when I arrived. Mama was very fatigued and took a nap shortly after I arrived. Visited w/ Papa across the street and found him to be in good spirits. He was watching the "Ellen DeGeneres Show" and even laughed at some of the dumb jokes. His face is not as puffy, and I thought his breathing, although still labored, was not as bad as before. He even joked about that..."What did I do in my life to deserve this..." It sounds sad, but we both laughed about it. I talked to the LPN about Papa's Megace. Freidenberg had ordered discontinuation of the drug. We had some concerns which I believe were voiced to hospice and hospice must have talked to Dr. Harris. Harris has ordered that Megace be continued.
Mama's window is repaired. Mags, thanks for everything you did regarding this. Good work.
Kate cannot do dinner on Sat, so how does breakfast at Bob Evans sound to everyone? Kate & I were thinking about the B. Evans in Dublin near 161, 9:00. Sound good? Mags, Mary, Fran, Liti, any of the boys?
Talk to you all soon. Love, T.
p.s. I did email Jeami w/ latest news since I was not sure she was reading blog.
Mama's window is repaired. Mags, thanks for everything you did regarding this. Good work.
Kate cannot do dinner on Sat, so how does breakfast at Bob Evans sound to everyone? Kate & I were thinking about the B. Evans in Dublin near 161, 9:00. Sound good? Mags, Mary, Fran, Liti, any of the boys?
Talk to you all soon. Love, T.
p.s. I did email Jeami w/ latest news since I was not sure she was reading blog.
Tuesday, April 15, 2008
It's Tuesday
Hi from Tish (4/15/08 12:00 p.m.): I have not heard from the Forum yet about Papa's Megace or the use of Ensure. If I don't hear in next couple of hours, I will contact them to inquire about hospice's input on this. Could be (re. meds) that Freidenberg feels it's time to wean Papa off his medications (other than those that are intended to make him comfortable, etc during this time). In any case, if I hear anything, I will post it.
Re this weekend, since Fran's going to be home, was wondering if anyone had any interest in trying to get together for dinner on Saturday. Know it's hard with family etc obligations, but thought it would be nice.
Love, T.
Re this weekend, since Fran's going to be home, was wondering if anyone had any interest in trying to get together for dinner on Saturday. Know it's hard with family etc obligations, but thought it would be nice.
Love, T.
Monday, April 14, 2008
Better Day on Sunday
Hi to all...This is Kate.
Please make sure you read through all the below posts and comments. Jason has added some old family pictures, as well as pics of Lita and Bob's new condo... and Tish, Fran, and Margaret have all added their own info under comments. Lots of good info.
Let's see...Friday, I wrote that the nurse from hospice had called with an update. Papa does now receive oxygen to help him breathe eaiser. That will explain the tank in his room if you visit. The increased Lasix that was ordered on Friday seems to have begun lessening his swelling.
We went for a visit on Sunday and had a good visit with both Mom and Pops. We saw Papa first. Lita and Bob were there already with Josie. Papa was sitting up in his chair and was very alert. His face was much less swollen than the last time I had seen him, and his hand was also much less swollen. My biggest relief was to see how alert he was. He was interested in hearing our conversation and was very interested in Josie. He wanted to pet her and kiss her. It was very sweet. He laughed at some of the things we said, and overall it was a much better visit than I have had with him in a long time.
He walked down to the dining room with his walker, and said he felt "pretty good". When we left him to go visit Mama, he said to tell her he loved her. I told him that we would try to get her over to see him today if he wanted...and he said yes definitely. I will work on that with Sandy, director of Mama's place.
Next we went to see Mama. She was having a confused day, but a sweet day. She was out in the main room with the other residents, visiting with Lita and Bob. There was a resident that was trying to get in her personal space...and she told him to "go away!" very emphatically and then moved herself away. It was like watching two toddlers trying to interact. I was happy to see Mama use her spunk to stand up for herself. She ate a good dinner with my assistance. And then when I suggested going to her room, she told me she didn't have a room anymore. When I walked her to her room, and opened the door, she was amazed. I showed her where her name was, she likes to read 2-3 word phrases...she is always proud of her accomplishment when she does this. She also asked me where her clothes were...could she get them back? When I opened her closet for her, again, she was amazed. Like I said she was confused but sweet.
We visited with her for about an hour. She loves to hear that we love her, and always responds very sweetly. After awhile she was beginning to fall asleep so, I left her laying down in her bed.
The nurse aide told me she would go in shortly and get Mama ready for bed. I witnessed many very kind interactions from the staff to the other residents while I was there. The nurse was wonderful, and did check on Mama's window repair for me. It should be taken care of by tomorrow morning at the latest.
Lastly, some of you have heard the fun news from the Albers...Jena tried out on Saturday morning for Dublin Idol...(similar to American Idol). She sang "Somewhere over the Rainbow".
She was in a group of 7-12 graders, so she was one of the youngest ones trying out...and she made the Top 10!!! We found out Saturday afternoon and the competition was Saturday evening...so not a lot of time to call all the in-towners to come watch...but it was quite an event. She sang beautifully and the pride I felt was beyond words. She didn't make it to the top 3...it was by audience vote. But, let me tell you, if it was based on true talent...she would have come in 2nd or 3rd for sure. She was wonderful. She loves performing, and comes alive on stage. Imagine her beautiful big blue eyes, with those long eyelashes, and then you add her incredible smile, comfortable stage presence and such a sweet voice. It was amazingly fun to see my child do something so far from my own comfort zone. What was even more amazing is how much she loved it! Performing is definitely her passion, so watch the blog for more Jena Albers updates...I'm sure you'll be hearing from her soon.
I will not be visiting Mama or Papa today and maybe not tomorrow...so if anyone else does, please update!
Love to all.
Kate
Please make sure you read through all the below posts and comments. Jason has added some old family pictures, as well as pics of Lita and Bob's new condo... and Tish, Fran, and Margaret have all added their own info under comments. Lots of good info.
Let's see...Friday, I wrote that the nurse from hospice had called with an update. Papa does now receive oxygen to help him breathe eaiser. That will explain the tank in his room if you visit. The increased Lasix that was ordered on Friday seems to have begun lessening his swelling.
We went for a visit on Sunday and had a good visit with both Mom and Pops. We saw Papa first. Lita and Bob were there already with Josie. Papa was sitting up in his chair and was very alert. His face was much less swollen than the last time I had seen him, and his hand was also much less swollen. My biggest relief was to see how alert he was. He was interested in hearing our conversation and was very interested in Josie. He wanted to pet her and kiss her. It was very sweet. He laughed at some of the things we said, and overall it was a much better visit than I have had with him in a long time.
He walked down to the dining room with his walker, and said he felt "pretty good". When we left him to go visit Mama, he said to tell her he loved her. I told him that we would try to get her over to see him today if he wanted...and he said yes definitely. I will work on that with Sandy, director of Mama's place.
Next we went to see Mama. She was having a confused day, but a sweet day. She was out in the main room with the other residents, visiting with Lita and Bob. There was a resident that was trying to get in her personal space...and she told him to "go away!" very emphatically and then moved herself away. It was like watching two toddlers trying to interact. I was happy to see Mama use her spunk to stand up for herself. She ate a good dinner with my assistance. And then when I suggested going to her room, she told me she didn't have a room anymore. When I walked her to her room, and opened the door, she was amazed. I showed her where her name was, she likes to read 2-3 word phrases...she is always proud of her accomplishment when she does this. She also asked me where her clothes were...could she get them back? When I opened her closet for her, again, she was amazed. Like I said she was confused but sweet.
We visited with her for about an hour. She loves to hear that we love her, and always responds very sweetly. After awhile she was beginning to fall asleep so, I left her laying down in her bed.
The nurse aide told me she would go in shortly and get Mama ready for bed. I witnessed many very kind interactions from the staff to the other residents while I was there. The nurse was wonderful, and did check on Mama's window repair for me. It should be taken care of by tomorrow morning at the latest.
Lastly, some of you have heard the fun news from the Albers...Jena tried out on Saturday morning for Dublin Idol...(similar to American Idol). She sang "Somewhere over the Rainbow".
She was in a group of 7-12 graders, so she was one of the youngest ones trying out...and she made the Top 10!!! We found out Saturday afternoon and the competition was Saturday evening...so not a lot of time to call all the in-towners to come watch...but it was quite an event. She sang beautifully and the pride I felt was beyond words. She didn't make it to the top 3...it was by audience vote. But, let me tell you, if it was based on true talent...she would have come in 2nd or 3rd for sure. She was wonderful. She loves performing, and comes alive on stage. Imagine her beautiful big blue eyes, with those long eyelashes, and then you add her incredible smile, comfortable stage presence and such a sweet voice. It was amazingly fun to see my child do something so far from my own comfort zone. What was even more amazing is how much she loved it! Performing is definitely her passion, so watch the blog for more Jena Albers updates...I'm sure you'll be hearing from her soon.
I will not be visiting Mama or Papa today and maybe not tomorrow...so if anyone else does, please update!
Love to all.
Kate
Sunday, April 13, 2008
Noelita & Bobs' New Condo
Had dinner with Noelita & Bob last night, and they are doing well and anxious to move into their new place. She is getting used to her new electric wheelchair.
For you "Out-of-town"-ers: Heres a link, to pictures.
http://her.realliving.com/Property/Details.aspx?PropID=8678192
Also, there is a link for a "virtual tour" of it, incase anyone wants to see it, and hasn't yet. (Hit "virtual tour" link, to the right of the first picture)
- Jas
For you "Out-of-town"-ers: Heres a link, to pictures.
http://her.realliving.com/Property/Details.aspx?PropID=8678192
Also, there is a link for a "virtual tour" of it, incase anyone wants to see it, and hasn't yet. (Hit "virtual tour" link, to the right of the first picture)
- Jas
Old Family Pictures
April 2008
Hey Guys,
I recently found a bunch of old photo albums, that somehow ended up on my bookshelf. Some old photo albums that I had collected or been given to me, from my parents. Lots of kids pictures, lots of 70s pictures, etc.
I got very nostalgic, looking at em. I tried to think of a good way to share them with everyone. I wanted to offer everyone the opportunity to see them! It has been very cool for me, to see everyone in my families, in a different light! (Seeing grandparents as parents, aunts and uncles as kids, parents as young adults, etc). I also wanted to offer everyone the opportunity to have the originals, if they want em. I set out to scan them all into my computers, to have digital copies of them, in case something were ever to happen to the originals (lost during a move, etc) Very OCD of me, I know.
So, since most of the family is spread out across the states, I figured posting em on-line would work. Not as personal of a thing, but still fun. The link is below. Just click it. And if you want any of the originals of you or your family, please just let me know! If the quantity leans heavy of Jason & Noelita & Keith pictures, I'm sure you'll be sure to razz me for it at the next family function.
I thought it would be nice to make some sort of collage with em, for the next family get-together or something, or email them to each individual. And then I realized what a HUGE project it is, even trying to organize them all, and scan each page into the computer, etc. It took hours and hours and weeks of work. With how much I work every week and "life" stuff, I simply did not have the time at all to invest as much as I'd like into this project. I have about 4-5 more photo albums to scan, so I may be posting updates of new pictures in the next few weeks, depending on if I have time to keep working on it.
So, I hope this will suffice! And I hope you guys have fun seeing these old pictures. MAYBE IT WILL BRING BACK SOME GOOD MEMORIES AND MAKE YOU SMILE! That was really my intention! I BELIEVE you can print them also, from photobucket.com. Or right click the file, and "Save As" onto your computer, then print, or do what you like with them! For the older people in the family that don't use computers much, I would appreciate it if we could still show them somehow. Please feel free to show them the pictures via your laptop or prints!
IN SUMMARY (for you people who get distracted by too many words):
Family Pictures. Click Link: GO!
Cabrera Old Family Pictures
http://s223.photobucket.com/albums/dd75/RavinVsFlud/Cabrera%20Family%20Pictures/?start=all
Here is a quick sample of some of the images:
Enjoy! Love you all,
Jas
Hey Guys,
I recently found a bunch of old photo albums, that somehow ended up on my bookshelf. Some old photo albums that I had collected or been given to me, from my parents. Lots of kids pictures, lots of 70s pictures, etc.
I got very nostalgic, looking at em. I tried to think of a good way to share them with everyone. I wanted to offer everyone the opportunity to see them! It has been very cool for me, to see everyone in my families, in a different light! (Seeing grandparents as parents, aunts and uncles as kids, parents as young adults, etc). I also wanted to offer everyone the opportunity to have the originals, if they want em. I set out to scan them all into my computers, to have digital copies of them, in case something were ever to happen to the originals (lost during a move, etc) Very OCD of me, I know.
So, since most of the family is spread out across the states, I figured posting em on-line would work. Not as personal of a thing, but still fun. The link is below. Just click it. And if you want any of the originals of you or your family, please just let me know! If the quantity leans heavy of Jason & Noelita & Keith pictures, I'm sure you'll be sure to razz me for it at the next family function.
I thought it would be nice to make some sort of collage with em, for the next family get-together or something, or email them to each individual. And then I realized what a HUGE project it is, even trying to organize them all, and scan each page into the computer, etc. It took hours and hours and weeks of work. With how much I work every week and "life" stuff, I simply did not have the time at all to invest as much as I'd like into this project. I have about 4-5 more photo albums to scan, so I may be posting updates of new pictures in the next few weeks, depending on if I have time to keep working on it.
So, I hope this will suffice! And I hope you guys have fun seeing these old pictures. MAYBE IT WILL BRING BACK SOME GOOD MEMORIES AND MAKE YOU SMILE! That was really my intention! I BELIEVE you can print them also, from photobucket.com. Or right click the file, and "Save As" onto your computer, then print, or do what you like with them! For the older people in the family that don't use computers much, I would appreciate it if we could still show them somehow. Please feel free to show them the pictures via your laptop or prints!
IN SUMMARY (for you people who get distracted by too many words):
Family Pictures. Click Link: GO!
Cabrera Old Family Pictures
http://s223.photobucket.com/albums/dd75/RavinVsFlud/Cabrera%20Family%20Pictures/?start=all
Here is a quick sample of some of the images:
Enjoy! Love you all,
Jas
Friday, April 11, 2008
What a rollercoaster ride!
By now, I think most of you have heard that Mama is not at the critical stage we all thought she was. On Wednesday night, the discussion was about feeding tubes and palliative care. By the time Margaret and I arrived on Thursday, she was able to swallow, both soft food and liquids. The doctor called it miraculous...I beieve that there was confusion on her diagnosis due to what they referred to as Mama being septic due to the urinary tract infection. My understanding is that when you become septic...your body begins to shut down...one of those symptoms was her inability to swallow. If that had been due to her dementia, it would have been irreversible. Since it was more likely due to the sepsis...it was reversible once she got on antibiotics.
John was the first to arrive at the hospital. Shortly before he got there, Mama had become extremely agitated, she climbed out of her bed, pulling her IV out, and when the nurses tried to restrain her themselves, there was quite an incident with her scratching and biting the nurses. Because she would not stay in the bed, and kept trying to wander the hallways, they restrained her in the bed. When John got there, he was able to calm her down (they were trying to get a med order for something to calm her, but once family members began coming...this was calming enough for her, and she did not need the meds).
When Margaret and I got there, Mama was incredibly lucid for a short period of time, asking Margaret if she had found a job yet. And asking Amber if the baby had come yet. Then she had her weepy period of time. Once they gave her meds, she became very sleepy and this is how she was when I left her.
The psychiatric doctor came and examined Mama and discussed her history with us. She felt the meds Mama were on for bi-polar and dementia were a pretty good combination...but asked why she was no longer on Adavan (sp?). I told her that I thought Dr. Friedenberg had recommended a new drug in replacement that would be a patch...but I wasn't sure if that had begun. I believed the Adavan was not long-acting enough, and they were trying something that would be more of a continuous effect. She wrote an order while Mama was in the hospital for Haldol as needed either orally or by injection if Mama became to agitated.
The doctor thought Mama would be released as early as today (Friday). Will keep you all posted if that is the case. She will go back to the Forum Memory Care Facility.
Now about Papa...Several of us met with the hospice provider, Harbor Lights. This is the hospice provider that Dr. Harris is affiliated with. They were wonderful. Papa does qualify for hospice, and MediCare pays for this service completely. They do believe his swelling is due to edema from end stage kidney failure. The swelling will continue to get worse as the days go on. They will begin seeing him just about every day. There is a whole team that will work with. 3 days a week it will be a nurse's aide. Then there is a chaplain, a social worker, and a nurse that will be there on the other days. Today they are getting him a new bed that rises, and lowers for them to provide easier more comfortable care. It also makes it so he can rise his head or feet (similar to a hospital bed).
Tish took very extensive notes...so I will let her comment more in depth. I have asked to be the contact person for hospice. They have said that they cannot predict at this point how long Papa has...but that once the edema begins, it usually isn't a long time....but again they did not want to be pinned down to a certain amount of time. When they feel his death is imminent they will contact me. I will then begin a phone chain amongst the siblings. I don't want to be making 9 phone calls at that point. I will call Margaret, ask Margaret to call Paul...and on up the line. If you can't get through to the person above you, please leave a message and contact the next person. Does this sound acceptable?
Hospice will work on his comfort and quality of life. His dignity is of utmost concern for them, and I think this will help Papa tremendously. They will refer to themselves as from Harbor Lights, and will not say they are from hospice. They are here to serve the family as well. Any one of the siblings can call with a question anytime. There is a general phone number 1-888-227-6543. When you call that number, let them know who you are calling about, and they will get one of Papa's team to call you back. We have suggested a notebook to be left on Papa's dresser that we can write info, questions, etc. This will be for any one working with Papa and for any family members. It may take awhile to get people to use the notebook...But it could be a helpful tool, so we will try it.
I will receive a phone call twice a month automatically with updates. And anytime any major change happens, they will call immediately. I will post this info as I get it. I think that is about all the info I have for now.
I can't imagine a better group of people to be riding this ride with. I am learning so much about all of my siblings in the is process and am very grateful for what each one of you bring to the family, and to Mama and Papa.
Love,
Kate
John was the first to arrive at the hospital. Shortly before he got there, Mama had become extremely agitated, she climbed out of her bed, pulling her IV out, and when the nurses tried to restrain her themselves, there was quite an incident with her scratching and biting the nurses. Because she would not stay in the bed, and kept trying to wander the hallways, they restrained her in the bed. When John got there, he was able to calm her down (they were trying to get a med order for something to calm her, but once family members began coming...this was calming enough for her, and she did not need the meds).
When Margaret and I got there, Mama was incredibly lucid for a short period of time, asking Margaret if she had found a job yet. And asking Amber if the baby had come yet. Then she had her weepy period of time. Once they gave her meds, she became very sleepy and this is how she was when I left her.
The psychiatric doctor came and examined Mama and discussed her history with us. She felt the meds Mama were on for bi-polar and dementia were a pretty good combination...but asked why she was no longer on Adavan (sp?). I told her that I thought Dr. Friedenberg had recommended a new drug in replacement that would be a patch...but I wasn't sure if that had begun. I believed the Adavan was not long-acting enough, and they were trying something that would be more of a continuous effect. She wrote an order while Mama was in the hospital for Haldol as needed either orally or by injection if Mama became to agitated.
The doctor thought Mama would be released as early as today (Friday). Will keep you all posted if that is the case. She will go back to the Forum Memory Care Facility.
Now about Papa...Several of us met with the hospice provider, Harbor Lights. This is the hospice provider that Dr. Harris is affiliated with. They were wonderful. Papa does qualify for hospice, and MediCare pays for this service completely. They do believe his swelling is due to edema from end stage kidney failure. The swelling will continue to get worse as the days go on. They will begin seeing him just about every day. There is a whole team that will work with. 3 days a week it will be a nurse's aide. Then there is a chaplain, a social worker, and a nurse that will be there on the other days. Today they are getting him a new bed that rises, and lowers for them to provide easier more comfortable care. It also makes it so he can rise his head or feet (similar to a hospital bed).
Tish took very extensive notes...so I will let her comment more in depth. I have asked to be the contact person for hospice. They have said that they cannot predict at this point how long Papa has...but that once the edema begins, it usually isn't a long time....but again they did not want to be pinned down to a certain amount of time. When they feel his death is imminent they will contact me. I will then begin a phone chain amongst the siblings. I don't want to be making 9 phone calls at that point. I will call Margaret, ask Margaret to call Paul...and on up the line. If you can't get through to the person above you, please leave a message and contact the next person. Does this sound acceptable?
Hospice will work on his comfort and quality of life. His dignity is of utmost concern for them, and I think this will help Papa tremendously. They will refer to themselves as from Harbor Lights, and will not say they are from hospice. They are here to serve the family as well. Any one of the siblings can call with a question anytime. There is a general phone number 1-888-227-6543. When you call that number, let them know who you are calling about, and they will get one of Papa's team to call you back. We have suggested a notebook to be left on Papa's dresser that we can write info, questions, etc. This will be for any one working with Papa and for any family members. It may take awhile to get people to use the notebook...But it could be a helpful tool, so we will try it.
I will receive a phone call twice a month automatically with updates. And anytime any major change happens, they will call immediately. I will post this info as I get it. I think that is about all the info I have for now.
I can't imagine a better group of people to be riding this ride with. I am learning so much about all of my siblings in the is process and am very grateful for what each one of you bring to the family, and to Mama and Papa.
Love,
Kate
Wednesday, April 9, 2008
Mama
A quick update, Mama is in the hospital today (Wednesday) after an episode yesterday. We are still waiting for a formal assessment from the doctor (Margaret is at the hospital right now with her).
The Forum called Tish Tuesday evening to tell her that they had found Mama on the floor of her room, face down in between the bed and wall. She was moaning, but otherwise unresponsive. She had them call the ambulance and send Mama to Riverside Hospital. In the emergency room last night they ran several tests to check for possible stroke, heart problem, or broken bones. All tests so far, have come back normal.
She is resting most of the time...dozing in and out. The nurse told Margaret that one of the meds Mama is on, often makes you very sleepy...maybe this is the new med that Mama just started? Mama is having difficulty swallowing, and has not been able to eat any food today. They have been giving her IV fluids. Difficulty swallowing is often a sign that the dementia has advanced to another level.
That's all I know at this point. I will let you know once we find out anymore. The meeting with hospice is definitely set for Thursday at 6pm at the Forum where Papa lives. Any siblings are welcome, but please don't feel a responsibility to be there. We will meet at the front desk and then go up to the third floor library (down the hall from Papa's old 3rd floor apartment).
Love,
Kate
The Forum called Tish Tuesday evening to tell her that they had found Mama on the floor of her room, face down in between the bed and wall. She was moaning, but otherwise unresponsive. She had them call the ambulance and send Mama to Riverside Hospital. In the emergency room last night they ran several tests to check for possible stroke, heart problem, or broken bones. All tests so far, have come back normal.
She is resting most of the time...dozing in and out. The nurse told Margaret that one of the meds Mama is on, often makes you very sleepy...maybe this is the new med that Mama just started? Mama is having difficulty swallowing, and has not been able to eat any food today. They have been giving her IV fluids. Difficulty swallowing is often a sign that the dementia has advanced to another level.
That's all I know at this point. I will let you know once we find out anymore. The meeting with hospice is definitely set for Thursday at 6pm at the Forum where Papa lives. Any siblings are welcome, but please don't feel a responsibility to be there. We will meet at the front desk and then go up to the third floor library (down the hall from Papa's old 3rd floor apartment).
Love,
Kate
Tuesday, April 8, 2008
Saturday, Sunday and Monday
Hi to all,
I will try to keep this short, but informative. Fran came in Friday night and we saw Mama and Papa on Saturday. Papa was not well. The aide told us he had eaten very little for breakfast and no lunch. He drank an Ensure while we there and said it was "so good". (we try to keep these stocked in his little frig...whenever you go visit, offer him one.) Margaret, Tish, and I have been buying them when we see the need. Fran bought several more for him while she was here. He mostly sat in his chair or layed in his bed while we visited. He told us he tries to sit up in his chair because it helps him concentrate. He wants to lay down most of the time now...but he loses awareness of what is going on, when he is laying down. His face is puffy and he looks more like Tio now. He wanted to see Mama but said he was not able to go over to visit...he is just too worn out, even to go in a wheelchair. We asked him if he was up to us bringing Mama to him...He nodded an emphatic "YES".
We then went over to see Mama. She was extremely agitated, crying and saying that she wanted "out of this place". She was offering anything she could if we would help her get out...her furniture, lamps, even her clothes. We summoned the nurse to see if she had had her Adavan for anxiety. We didn't want to take her over to see Papa in such an agitated state. The nurse said she had already taken it, but that she would check to see if she could give her some more. Once Mama got more medicine she became calmer, but then when we suggested going to see Papa...Mama said she was too scared to leave, and began weeping. This was quickly followed by her falling into a deep sleep. We managed to calm her down, alright, but then we were unable to get her over to see Papa. Papa was disappointed when we told him she couldn't come, but quickly went back to sleeping and we told him we would try again the next day.
Then came Sunday...We decided to go over earlier in the day, and got over to see Papa about 9:30. He seemed slightly more alert. He said yes, he would like it if Mama came over, so we tried again. When we got over to see Mama, they said she had had a "difficult" morning and had refused to take most of her meds. They had tried to crush them up and mix them in chocolate. She had chocolate on her hands and pants from trying to fight with them. They had gotten her to take her Adavan and by the time we got there, she was weepy, but relatively calm. She said, yes she would like to go see Papa.
We got a wheelchair and wheeled her across the street, it was a beautiful day outside. When we got to Papa's room, they were both so happy to see each other. They reached their hands out to each other and held hands...both of them shaking the whole time. Mama knew who Papa was, and had an incredibly sweet reaction to him. She kissed his hands and told him she loved him. They kissed. They sat on the couch for a few minutes holding hands, and then Papa had to lie down. She got up out of her wheelchair, stroked his cheek and told him she loved him. When it was time to take Mama back, they kissed, clasped hands, and Mama said..."I love you honey" and Papa said, "I love you too sweetheart" Words cannot express the sweetness of this moment. I'm not sure that they will have another moment like it...with Mama being aware and sweet, and Papa being able to respond. They both needed it and I am so glad that they had this time.
Monday update was that Papa was again very weak when Margaret visted him. She only stayed for a few minutes. He was finishing his dessert from lunch (only a bite or two) and then he asked her to help him lie down. She said he told her to "Tell your mother I love her", as she told him she was going to visit Mama.
Mama had an extreme agitated day again. She took her cane and broke out a window, yelling for "Freedom, freedom". It is heart wrenching to see her in so much anguish, and yet I find it somehow helpful to see the humor in the fact that she is paying us all back for being such hellyuns as teenagers :) They calmed her down with medication and Margaret made it over shortly after the incident occured. The staff is still very hopeful that they can work with her medications to get the right combination to get her to a better place mentally. They told Margaret this just takes time. I plan on calling to check on her later this afternoon.
Tish posted a comment about Lita and Bob...hopefully you got a chance to read it. They found a condo that they put a bid on. Read Tish's comment for more info.
Lastly, we have decided to go ahead and have hospice do an assessment on Papa. They were hopeful to do this sometime Monday afternoon or this morning (Tuesday). They said after that the next step is to meet with any immediate family members that want to...to hear about the assessment and to hear what services hospice can provide both for family members and for Papa. Now....they may come back and say that Papa is not yet ready for hospice...this would shock me, but it may be what happens. Regardless, they can inform us what services will be provided once hospice does begin. All siblings are welcome to be present at this meeting, but it is no way a requirement. Just please know you are welcome. I have been trying to get a confirmation on appointment time. I tentatively have it set up for Thursday at 6pm at the Forum, where Papa lives. I will post later when I get a confirmation of time and exact place.
That is all for now. Please post any of your experiences...even if they don't have anything to do with Mama and Papa. All family news is appreciated.
Love,
Kate
I will try to keep this short, but informative. Fran came in Friday night and we saw Mama and Papa on Saturday. Papa was not well. The aide told us he had eaten very little for breakfast and no lunch. He drank an Ensure while we there and said it was "so good". (we try to keep these stocked in his little frig...whenever you go visit, offer him one.) Margaret, Tish, and I have been buying them when we see the need. Fran bought several more for him while she was here. He mostly sat in his chair or layed in his bed while we visited. He told us he tries to sit up in his chair because it helps him concentrate. He wants to lay down most of the time now...but he loses awareness of what is going on, when he is laying down. His face is puffy and he looks more like Tio now. He wanted to see Mama but said he was not able to go over to visit...he is just too worn out, even to go in a wheelchair. We asked him if he was up to us bringing Mama to him...He nodded an emphatic "YES".
We then went over to see Mama. She was extremely agitated, crying and saying that she wanted "out of this place". She was offering anything she could if we would help her get out...her furniture, lamps, even her clothes. We summoned the nurse to see if she had had her Adavan for anxiety. We didn't want to take her over to see Papa in such an agitated state. The nurse said she had already taken it, but that she would check to see if she could give her some more. Once Mama got more medicine she became calmer, but then when we suggested going to see Papa...Mama said she was too scared to leave, and began weeping. This was quickly followed by her falling into a deep sleep. We managed to calm her down, alright, but then we were unable to get her over to see Papa. Papa was disappointed when we told him she couldn't come, but quickly went back to sleeping and we told him we would try again the next day.
Then came Sunday...We decided to go over earlier in the day, and got over to see Papa about 9:30. He seemed slightly more alert. He said yes, he would like it if Mama came over, so we tried again. When we got over to see Mama, they said she had had a "difficult" morning and had refused to take most of her meds. They had tried to crush them up and mix them in chocolate. She had chocolate on her hands and pants from trying to fight with them. They had gotten her to take her Adavan and by the time we got there, she was weepy, but relatively calm. She said, yes she would like to go see Papa.
We got a wheelchair and wheeled her across the street, it was a beautiful day outside. When we got to Papa's room, they were both so happy to see each other. They reached their hands out to each other and held hands...both of them shaking the whole time. Mama knew who Papa was, and had an incredibly sweet reaction to him. She kissed his hands and told him she loved him. They kissed. They sat on the couch for a few minutes holding hands, and then Papa had to lie down. She got up out of her wheelchair, stroked his cheek and told him she loved him. When it was time to take Mama back, they kissed, clasped hands, and Mama said..."I love you honey" and Papa said, "I love you too sweetheart" Words cannot express the sweetness of this moment. I'm not sure that they will have another moment like it...with Mama being aware and sweet, and Papa being able to respond. They both needed it and I am so glad that they had this time.
Monday update was that Papa was again very weak when Margaret visted him. She only stayed for a few minutes. He was finishing his dessert from lunch (only a bite or two) and then he asked her to help him lie down. She said he told her to "Tell your mother I love her", as she told him she was going to visit Mama.
Mama had an extreme agitated day again. She took her cane and broke out a window, yelling for "Freedom, freedom". It is heart wrenching to see her in so much anguish, and yet I find it somehow helpful to see the humor in the fact that she is paying us all back for being such hellyuns as teenagers :) They calmed her down with medication and Margaret made it over shortly after the incident occured. The staff is still very hopeful that they can work with her medications to get the right combination to get her to a better place mentally. They told Margaret this just takes time. I plan on calling to check on her later this afternoon.
Tish posted a comment about Lita and Bob...hopefully you got a chance to read it. They found a condo that they put a bid on. Read Tish's comment for more info.
Lastly, we have decided to go ahead and have hospice do an assessment on Papa. They were hopeful to do this sometime Monday afternoon or this morning (Tuesday). They said after that the next step is to meet with any immediate family members that want to...to hear about the assessment and to hear what services hospice can provide both for family members and for Papa. Now....they may come back and say that Papa is not yet ready for hospice...this would shock me, but it may be what happens. Regardless, they can inform us what services will be provided once hospice does begin. All siblings are welcome to be present at this meeting, but it is no way a requirement. Just please know you are welcome. I have been trying to get a confirmation on appointment time. I tentatively have it set up for Thursday at 6pm at the Forum, where Papa lives. I will post later when I get a confirmation of time and exact place.
That is all for now. Please post any of your experiences...even if they don't have anything to do with Mama and Papa. All family news is appreciated.
Love,
Kate
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